Spare a Rose results

To see the results of this years Spare a Rose campaign and see how many children's insulin needs will be taken care of this year, please go to Kerri's blog post found here: http://sixuntilme.com/wp/2015/02/25/spare-rose-2015-results/

My JDRF One Walk page

It is that time of year again!  

Here is my JDRF One Walk page: http://www2.jdrf.org/goto/MeganDiabeticWarrior

My fundraising goal this year is $1000 and $4000 for the team!

Help me get there if you are able!  Let's do this!

This is my 5th year participating in this walk and so far our team has raised a total of $7,654.00

Only walk the walk when you have to.

Don't attempt to try on the shoes until you have to walk in them.  

Diabetes is surrounded by a lot of misinformation, stigma and assumptions.
  
Assumptions about what its like to have Diabetes are the things that hurt the worst. If you want to know about Diabetes please ask, I would be glad to help you know better and spare another person from the hurtful words or incorrect assumptions.

Assumptions I have heard from people include: can you eat that, oh you can't eat this can you, my grandma had Diabetes and they cut her leg off, oh my -insert relative- died from Diabetes, you must be a bad Diabetic because you test more than -insert name-, will you die if you eat this, can you eat sugar, oh I'm sorry I didn't bring you one because you are Diabetic, you don't look sick, are you going to die from kidney disease, are you worried about going blind, you are on an insulin pump oh you must have it real bad, youd go into a coma if you ate this wouldn't you, aren't you worried about your daughter becoming Diabetic (are you trying to say I shouldn't have had my child just because I have Diabetes), those are just a few off the top of my head.

If you know someone with a chronic disease or condition please offer them your support, don't tease them, dangle things in front of them they can't do or eat, don't chastise them for not being more "compliant" sooner.  Lifestyle change is never ever easy. Evvvvverrrrrr.

Wearing an insulin pump

Wearing an insulin pump isnt "just" wearing an insulin pump, its the part I dislike about being attached to it every single moment of my life. I cannot manage my Diabetes without this amazing device, without it I go low and high and high and low and no rhyme or reason because on an insulin syringe there is no .30 units or .65 units. These are examples of my hourly basal rates. Those are the reasons why I cant do Diabetes without this insulin pump.

I dislike and even somedays hate what it means to wear this thing. People assume you wear a pump and your Diabetes is just whhhaaallllaaaaa super easy, fixed, or the oppostie....and the dreaded comment.....You must have Diabetes REAL BAD. Even those things arent the number one thing that bothers me. I hate what this thing does to my skin, its appearance, texture, smoothness, pain, sores, scabs, stabbing pain....etc etc. 

There is no sugar coating it, it makes my skin look like crap. The sides of my hip/butt and my love handles are dotted with scars. I look like a leopard. I use Bio Oil to help heal the infusion holes, help fade the scars but they are still there. For my skin it takes years for these dots to fade totally. I still have scars from my childhood and even some of them have just faded. Thats 20 years ago, 20 years.

Not everyone's skin heals the same or scars the same, but that is how my skin is. I cannot help but wonder, what will my skin look like after Ive worn this pump for over 20 years? Will I be able to even wear it? I cannot use my stomach area, my legs or arms at all. The pain is unbearable and yet Ive only met a handful of people who also have this terrible burning pain when they use those areas. I have such a limited amount of skin real estate to use. I cant help but worry.

Please someone out there find a cure for this disease.

Please pray for Kycie!

Please click here to view updates, make a dontation, or leave your comment.
http://www.youcaring.com/medical-fundraiser/kisses-for-kycie/300561


Update:

www.kissesforkycie.com ‪#‎Repost‬ @jjterry77 ・・・Guess who is breathing on her own. They tried a spontaneous breathing trial. This is where they turn the breathing machine off and she what happens. It's all Kycie! The machine still gives her "positive pressure". It is hard to breath through a small tube, so when she sucks in the machine will help push the air. They will leave the machine off until the extubate later today. Also, her eyes have been open more this morning. Last blood sugar was 238, our last orders were to correct for anything higher than 150. ‪#‎smallandsimple‬ ‪#‎kissesforkycie‬

Copied from her youcaring page:

"Please join us in supporting the Terry Family!

On January 25th, sweet Kycie started complaining of a headache. On Monday she said her tummy hurt and a little later she threw up. Her mom and dad figured she was coming down with the flu. She slept all day Monday. She was giving her sprite and water to help her tummy. She did not want any food. Tuesday there was no change, and her brothers started to complain of stomach aches and sore throats. Jamie took Daxton and Kycie to the doctor on Wednesday. They were given antibiotics for strep throat. By Thursday night, she was worse. On friday they went to the doctor and went to the ER at 1:00pm. By 5:00pm she was life flighted to Primary Children's Hospital with blood sugar of 1148. Her parents had no idea that sweet little Kycie had diabetes! 

Enroute to the hospital she had a seizure and another one right when they got to the hospital. She has been unresponsive ever since. At this point her blood sugars are under control. After reviewing her MRI the doctors said that she has extensive damage to the brain. The brain had herniated into the brain stem.They said if she survives to prepare themselves for her to be severely handicapped. They will do another MRI on Tuesday and at that point with decide if they should consider taking her off the breathing machines.

The family is hoping for a miracle and knows that this little girl's life is in God's hands right now. You can show your support to the Terry family by keeping them in your prayers and donating to help with any financial expenses that they have. Let's join together to support this wonderful family! We love you Kycie! #kissesforkycie"

Emergency Glucagon injection and why/how it works and when it doesn't work. Something we all need to know.

I am in the CGM in the Cloud group on Facebook: https://www.facebook.com/groups/cgminthecloud/

There was recently a large discussion about the Glucagon injection and how and why it works and when it doesn't work.  When I was diagnosed with Type 1 Diabetes no one, not a single health care professional told me how it works and why.  More importantly they didnt tell me that it won't work in all instances of a seizure inducing low.  This is very important and as I am finding out, I was not the only one who didn't know this.

Can you spare $5 for the life of child this Valentines Day?

This Valentines Day can you spare the cost of one rose to make a donation to a coalition of people living with Diabetes who have made part of their Diabetes Advocacy to bring Diabetic supplies to children in other countries who are unable to get the very supplies (test strips & insulin) that will keep them alive? 

Without insulin anyone with Type 1 Diabetes will die. 

There are no other options with Type 1 Diabetes.  There is no cure.

The cost of one rose $5.00 will provide insulin or test strips for a child with Type 1 Diabetes for one month. 

The cost of one dozen roses $60.00 will provide those supplies for one year. 

Can you spare a rose?

Go here to make your donation:  http://www.p4dc.com/spare-a-rose/give/


#SpareARose