https://diatribe.org/dexcom-submits-g6-sensor-fda
Thursday, November 16, 2017
Dexcom has submitted to FDA for G6!!
https://diatribe.org/dexcom-submits-g6-sensor-fda
Wednesday, November 15, 2017
My t:slim X2 review after wearing it for a month now and why I still choose Dexcom
So I got my X2 and of course I started it up right away and had the tedious job of transferring all my settings over to the new pump. I am a woman so I have the joy of needing different profiles for different times of the month. Men be very thankful your hormones don't shift around during the month.
I got it up and running and it kept losing the Dexcom signal. I asked questions in the Tandem Facebook group and tried a few suggestions like, make sure the screen is face out, put it on the same side of your body as the sensor. Nothing worked. I finally called Tandem.
The power of prayer is amazing but it will not cure those of us with Type 1 Diabetes.
Tuesday, November 14, 2017
Today is World Diabetes Day
Monday, November 13, 2017
Trying so hard to expand my insulin pump site rotation sites.
Monday, November 6, 2017
Tandem tslim X2 was replaced....MUCH better results!
I also got my phone repaired so I have the back up receiver as my phone. The phone hardly ever loses signal and I use Share so I have to have a phone that is compatible with Share. --In case you didnt know there is a hacked version of Share on Reditt that you can put on any phone. Use at your own risk for reliability though.--
Thursday, November 2, 2017
When technology fails, my new Tandem X2 Pump, and then makes you go crazy!
It has been one heck of a crazy week. I got the Tandem tslim X2 pump and was crazy stoked! The thing will not keep Dexcom signal, drops it nonstop. I asked the Tandem FB group for help, they said try to make sure the screen is out if you are wearing it on your body, did that, said to make sure theyre on the same side of your body, did that, nothing worked. I have really no idea how this pump can have such a hard time keeping signal, I hope its just this fluke pump. I read in the group of many many people having the same issue. So why did Tandem not fix this issue before releasing this pump and how is this pump in the closed loop patient trials? I finally called Tandem, they sent me a new transmitter to try to fix the issue and Im really glad they tried that. That did not fix my issue though. It worked great all day long and I thought it was fixed.
So stupidly, I went to bed relying on it. I think because of all the walking we did for trick or treating I had a delayed bg drop. At 243 a.m. I woke up in a puddle of sweat, heart pounding, the typical I feel like I am going to die low, but not REALLY die of course, I have not had a low this bad in YEARS because of my Dexcom. I take my pump out of the band of my underwear (because for 8 years I have worn my pump in a like bralette type thing in a baby sock so I can HEAR alarms, but this pump the BRAND NEW X2 will not keep a damn signal there)...screen out so the signal will work, so I thought and it had the no signal icon! Then it comes up and says 41! Great 41! I felt 41 for sure. The kicker was that I just had also broke my Samsung Note 5 so I did not have the back up reliability of my phone, it NEVER loses signal. It would have been screaming at me for going under 55 and my followers phones would have also been screaming. I was super low for over 30 freaking minutes...obviously my glycogen stores had been working. I was super duper mad my damn pump wasnt alarming me. Also the fixed low alarm on the pump is WAY TOO QUIET, please DO NOT RELY ON IT! It of course alarmed after I got up and went downstairs to proceed to eat half my kitchen.
So now I have gone back in tech and Im using the Dexcom reciever. Unreal. My replacement pump will be here today. My fingers are crossed that it actually does what they say it is suppose to.
Tandem gave me all sorts of excuses for their crappy tech. The case is all metal, make sure its on the same side as your transmitter (which I in turn replied the whole reason I stayed with Tandem and Dexcom was the 20 foot range and not needing to be like Medtronic and have to have my pump on the same side practically on top of the transmitter) these are both lame reason Tandem. Fix these issues. Make your case out of something that will allow a signal to pass through, make your antenna stronger, I mean come on...Medtronic is going to bury you otherwise...they have already buried how many pump companies?!
This new pump had better work. How in the hell is this the pump in closed loop, you cant have a closed loop with a cgm signal drop issue! Also why are the alarms so stinking quiet...cant hear them under covers and with a fan on in your room...so again need the pump up by your head but it wont work that far away and through sheets. Sooooo lets hope the new one actually works.
Thursday, October 19, 2017
Tandem x2 with g5 pump, so far this signal loss thing is making me crazy!
Wednesday, October 18, 2017
Hope for our future
Want to participate in patient trials?
https://med.virginia.edu/diabetes-technology/participate/
Monday, October 16, 2017
The best low carb cookie I have tried ever!
Friday, October 13, 2017
My new tslim X2 Insulin Pump came today!
My original tslim went out of warranty 2 months ago. Talk about sweating it. I had to wait for new insurance to kick in a month ago and it took the new insurance a month to approve it.
I got the new tslim x2 with integrated Dexcom G5 data!
I am excited and thankful to have this technology in my hands. I am even more excited for the upcoming closed loop pump that takes the Dexcom data and self regulates my blood sugar. I have friends on Facebook in the final patient trials, this is such an exciting time in my lifes journey living with type 1 Diabetes.
I am hopeful that it will be in 2018 sometime. I am thankful to have the pump that will just have to be plugged into the computer, updated and will use the latest closed loop technology.
Here's to four more years attached to a medical device that hopefully in one year be doing me a whole lot more good!
Tuesday, August 29, 2017
Sadly I share another t1d has passed too soon.
https://www.gofundme.com/5cjezz-allen-family
Monday, August 14, 2017
Is it possible to have a tape reaction on one spot and not the other?
Lately when I wear my dexcom on my outer thigh, where the "saddlebag" area is the tape starts to really bother me around the edges. Its super wierd, if I just loosen the tape on the edges it usually stops feeling like its burning. The tape doesnt feel like it's burning anywhere else, its so strange. Anyone else have a tape reaction in one spot and not another?
Saturday, August 12, 2017
Times when I really wish I didnt have t1d the most.
I enjoy living low carb, but damn it, sometimes I want to feel like a regular person. It never works, I dont know why I give in, but I do.
Today sucked royally and so did last weekend.
Thursday, August 10, 2017
Why are people such cry babies today?
Thursday, August 3, 2017
So I fell off the face of the earth, but Im back now.
Friday, June 23, 2017
Dont eat the carbs!
Diabetes=carb intolerance
Peanut Allergy=dont eat the freaking peanuts!
So why WHY do we keep telling people with Diabetes to eat so many damn carbs per meal?!
https://robbwolf.com/2017/01/05/why-wont-we-tell-diabetics-the-truth/
I really wish it was easier to buy real food in American grocery stores instead of all the crap ingredients like high fructose corn syrup, maltodextrin (more corn) sugar and preservatives up the wazoo. Almost every single item in the grocery store has corn and sugar in it in some form. We dont need CORN AND SUGAR in all the food we eat.
Tuesday, May 23, 2017
Have you ever looked at your insulin pump site up close?
It is not leaking thankfully since it was my second attempt. My first resulting in me hitting a blood vessel or vein, never a pleasant experience.
This is why leg sites suck for me.
Friday, May 19, 2017
Trying some new real estate for my insulin pump.
I am trying outside thigh aka saddlebag area. Lol! I dont have much fat there but more than the front of my thigh where I use to try. I figured if I can wear my dexcom sensor there without any pain, I might as well try it. I have got to find some new real estate for my pump. I am sick and tired of using the sides of my hip/butt area and my lovehandle area. Im hoping and praying this works.
Might attempt my calf where I have been wearing my dexcom without "much" pain. The calf/right below my knee dex site will hurt a little for a day or two but then its good. I almost give up every time I use my calf because it is a bit painful but the pain does subside. I think its just that its a whole new area and my tissue is not at all use to being stabbed there. The lovehandle spots use to hurt like hell at first too, but those spots adjusted somehow.
The anxiety of trying a new spot is very real. I have to psych myself up every time only because of previous attempts going badly. So what I have been doing is squeezing the area up kind of hard to feel the pain of squeezing vs. the pain of a needle going into my skin. I have tough skin so I have to push rather hard to get my comfort short angled set into my body fat.
The joys of type 1 Diabetes....they just never stop giving!
Friday, May 5, 2017
Please contact your Senators!!! We have got to get this health care bill stopped!!!
Imagine you have something like Cancer, Diabetes, a mental health issue or some other life long chronic disease and the premium for health insurance is completely unaffordable so you have to go without!
How does a Cancer patient survive, how does a Type 1 Diabetic survive? They dont, plain and simple. No one can afford Cancer treatment or insulin without health insurance coverage.
My insulin is $1000/mo before insurance, test strips $600/mo, insulin pump supplies around $500, my Dexcom continuous glucose monitor sensors that keeps me safe are $90 each without insurance. One sensor is FDA approved to wear for ONE WEEK.
We have to get this bill stopped, I cannot believe in America we will revert back to allowing insurance companies to over charge the sick, the people who need health care the most!! Thousands of people are going to die if this is allowed to pass!
The links are below!
I just took action on an issue that I consider important. I urge you to take action yourself and spread the word! To take action on this issue, click on the link below: http://www2.jdrf.org/site/Advocacy?s_oo=ORIXb6jlcPDhq8IFFI7dMA&id=458 If the text above does not appear as a link or it wraps across multiple lines, then copy and paste it into the address area of your browser.
Or if you prefer to not use JDRFs form go here: https://www.senate.gov/general/contact_information/senators_cfm.cfm
Monday, May 1, 2017
Please contact Congress to not allow states to decide about pre existing coverage.
https://www2.jdrf.org/site/Advocacy?cmd=display&page=UserAction&id=472&mkt_tok=eyJpIjoiTXpJMk5URTJNV1F4TmpKaiIsInQiOiJIMzhtVzVcL2swVkRXdE1QT2Z4K2FGZ21kNVwvSWJ0MHg3a040a2pTN2t1dWwyZWtYVkxTTnV6T1REXC9NUVpGc0FwcEZaOTJnb2xVcnZFakxwUGU2UDJmVUN1eFJLRFwvXC9QdzcyeGVpeWd2MEFlT05KK0cxeWZraGNaNVwvWk1aS3Z2TyJ9
Friday, April 28, 2017
More wonderful stories and a video about Mandy.
http://www.indystar.com/story/life/2017/04/24/mandy-harris-saved-700-riley-babies-now-her-colleagues-crochet-700-jellyfish-preemies-her-memory/100611626/
https://m.facebook.com/story.php?story_fbid=10156450073394852&id=9812439851
Wednesday, April 12, 2017
I hate you Diabetes
Tuesday, April 4, 2017
How to NOT become an identity theft victim--OFF Topic Blog post
During all this stupid curve ball crap my identity was stolen. YEAH its not fun and I have learned a LOT and I want to share this all with you so that you do not become an identity theft victim yourself. Don't be as oblivious as I was, thinking that living in cornfieldville Illinois was safe! So hello whoever you are identity thief, there is a special place in Hell for you when you die!
I will list the things you all need to do right now, DO NOT DELAY!
- Run your own credit report EVERY SINGLE YEAR for free on annualcreditreport.com otherwise these identity thieves will run it and then have all of your credit history in their hands. They can then answer all challenge questions properly and get credit in your name, use your current credit cards and even increase your credit limit on any cards you have. They typically won't spend the money to run your report if you have already done it.
- CANCEL ALL DEPARTMENT STORE CREDIT CARDS or set up a password for each card!! All these people need is a fake ID card and your social security number and they can spend on your card.
- LOWER your credit limit on the ONE credit card you want to keep and also set up a password, DO NOT let them use your mothers maiden name, that info is available all over the internet, just search for yourself, you will be blown away at what is available.
- Sign up for all the free credit monitoring websites before the identity thieves do. This includes: www.creditkarma.com www.creditsesame.com www.quizzle.com www.credit.com www.nerdwallet.com After these people sign up in your name they can monitor all your credit cards, loans, mortgage, etc and if you cancel a card and get a new on they will also see that information
- Go to every single website you can find your name and information on and follow their steps to remove your name from their website
- Do all these things for your spouse or significant other as well
- If you have a debit card with a large daily limit get it lowered as low as you can handle
- Take all these things I have told you very seriously as this is what has happened to me and it is a disaster.
- Pay for some sort of credit monitoring service for you and your whole family.
- If you are no longer using a credit card, cancel it because if you aren't watching it they will use it.
- If your identity has been used IMMEDIATELY put a fraud alert on your credit file. You can do that by calling the credit bureaus and using their automated system to put an alert on your file.
- If it has been stolen, call your local or county police to file a report. After you have your report you can freeze your credit for FREE, because after they have gotten your ENTIRE CREDIT HISTORY off the internet they can forever get credit in your name, because they KNOW all the challenge questions based off your credit history.
- Call the Drivers License Facility and make sure no one has come in claiming to be you to get a duplicate license, MOST of these people just fake them and of course use their own picture.
- Call the Social Security Office to make sure no one has requested a duplicate card
- Any fraudulent inquiries or new credit in your name, call that company immediately to tell them it was not you and to freeze that account and to start working on getting it removed from your credit file and removing the inquiry on your credit report.
- OPEN ALL YOUR MAIL! I got 2 credit cards in the mail that I didn't apply for, if I had not opened that mail I would have never known my identity was stolen. I called them immediately, found out what happened and put the fraud alert on my credit files.
- When my brain starts functioning again I will let you know what else I have had to do!
Wednesday, March 29, 2017
Memorial letter about my dear friend Mandy.
Fast forward a few years and we were both on facebook and I sent her a friend request right away! I was part of this wonderful Diabetic support group for Moms, I told her about it and of course she wanted to be added to the group. We are a tight nit group of women who lean on each other for support and advice. We all love each other like family. All of them would be here today if they didn’t live so far away. They have asked me to send their love and to let you know they wish they could be here today. Mandy was a great addition to the group and even helped several of the ladies with their children when they started having seizures or other neurological problems. She was always so generous with her time and more than willing to share her knowledge. She made friends with all of the members in that group and the other groups we were in together right off the bat. She even went out of her way to help transition other people with Type 1 into a different diet to manage their Diabetes.
Mandy was a Warrior, she fought Diabetes better than most while managing a very demanding career, two children and a husband who she loves dearly. She would help everyone and anyone in the support groups she was in. She was so very humble and did not want any extra praise, even though in her career she saved many babies, she never asked for attention for the amazing things she accomplished.
I want you to know how much Mandy means to the online Diabetic community because it is so very important for you all to know how deeply she will be missed by them and me. She was a great friend to all of us and has changed many of us with type 1 forever for the better.
She has touched so many lives as the Pray4Mandy page and its 6000 plus followers have proven. I will continue to be an advocate for Type 1 and I will fight even harder for Mandy.
Mandy is an amazing woman, wife, mother and Doctor. She has changed the world for better and I wish she was here to see the difference her life has made and to know just how many people really love and care for her even if they never really met her.
Sunday, February 26, 2017
Finally picked up two new glucagon emergency kits.
I also wear a medic alert bracelet every single day from www.roadid.com with the medic alert symbol add on band on the side.
Are you on insulin and if you are do you have a glucagon kit?
Thursday, February 23, 2017
Where do you store your Glucagon Emergency Kit?
I realized mine were all expired, so I got a new prescription. I keep all my old kits though, just in case.
I keep one on my husband's bedside table, one in my purse and one in my kitchen cabinet with our vitamins, my in use pump supply boxes, pain meds etc etc.
Where do you keep yours?
<
Some benefits of wearing a CGM on your body 365/24/7
Pros:
- I know what my blood sugar is or is near at all times of the day and night
- I can drive my vehicle without as much worry about going low suddenly
- I can sleep much better knowing that my Dexcom should catch my lows
- I can react to a high or low much sooner and take corrective actions
- I know what the food I eat does to my blood sugar and how quickly it affects me
- Dexcom makes me much more responsible for the blood sugar readings and helps me to say no to foods I know I just cannot conquer
- I can wear it for longer than 7 days and just keep restarting it
- It gives me much more confidence living with t1d because I can look at my Dexcom and see where my blood sugar is trending.
Tuesday, February 21, 2017
Dexcom’s G6 Sensor Shines in Early Accuracy Study
Read the whole article here from 11/25/16:
https://diatribe.org/dexcom-g6-sensor-shines-early-accuracy-study?utm_source=facebook&utm_medium=organic
Saturday, February 18, 2017
Glucagon tutorials online and smartphone apps for you to download
Glucagon Tutorial by Danica!
https://youtu.be/E9dsdx0ceCo
Friday, February 17, 2017
What the public needs to be informed on about TYPE ONE DIABETES
I got brave and put my Dexcom sensor on my calf.
Another child needs your prayers as he went undiagnosed with t1d.
Stay updated on Mandys progress.
Thursday, February 9, 2017
A gofundme page for Mandy. -Now closed.
Her family has set up a gofundme page.
https://www.gofundme.com/pray4mandy
Thank you to all who donated, the family appreciates it so much. Losing Mandy was a major tragedy...we need a cure..we need it now.
Wednesday, February 8, 2017
Keep praying!
https://www.facebook.com/pray4mandy/
Come on Mandy you can do it, we are all pulling and praying for you!!
Please leave me your comments, it helps keep me motivated!
Tuesday, February 7, 2017
Do you have your Diabetes emergency plan in place and have you rehearsed it?
Do you have a glucagon emergency kit in your home and everyone knows where it is and how to use it?
I know this will not save everyone especially if you are alone but I cannot tell you how many people tell me they dont have any or know what it is. Do you have someone you can call when you have low blood sugar if you are alone?
A few years ago I didnt own any glucagon kits. Then I got married and had kids. I have one on my husbands bedside table, one in my purse at all times and one in kitchen cabinet.
Please keep in mind glucagon may not work if you have drank too much alcohol or have been through a lot of lows lately.
Saturday, February 4, 2017
Life with Type 1 Diabetes isnt always as black and white as we lead ourselves to believe. Please pray!
She had been fighting a cold or virus and was needing a lot more insulin than normal. She also wore a Dexcom, so dont ever rely on your cgm to save you, follow your instincts. Do not ignore your instincts they are very powerful.
Thursday, February 2, 2017
Dexcom G4 vs G5
Those of you who have made the switch are you happy? Anyone make the switch and not use an Apple phone?
I am not sure how much it is worth it to go to G5 and be forced to order new transmitters every 6 months.....
Anyone know if or when Tslim X2 will be a receiver for Dexcom G5? I am planning on getting another pump from Tandem this year. I just dont like any of the other options, Animas might go under and the delivery speed is too fast. I dont like Medtronic pumps and how they feel like they can force others out of insurance coverage (UHC). Plus I HATE Medtronic's CGM. I will always and FOREVER be a loyal Dexcom user unless something better comes out.
I cannot live without my Dexcom, at all, period.
Let me hear your thoughts and opinions, please!
Please leave me your comments, it helps keep me motivated!
Thursday, January 5, 2017
I appologize for being away for so long....
Apparently while I was gone my blog has taken off and I am getting a huge number of views! I was shocked! Thank you to all of you who have been reading my blog.
I had our second daughter at the end of September. She was born via repeat c section and very healthy and nearly 10 pounds. She was 2 weeks early due to my pre ecclampsia getting worse and the baby's heart rate being too high. The c section took me much longer to recover from this time. I was in pain for many weeks longer than the first time. I also had the awesome chance to experience tremendous trapped intestinal gas pain again (I have a wonderfully slow, too long large intestine) and it took 5 days to get out again. Intestinal gas pain is so much worse than a c section, hands down. My surgery healed wonderfully, not even a bruise but the internal pain took long to get better. I suppose it was because they had to pull an almost 10 pound baby out of my small body. I was HUGE! I did not let the hospital keep me 5 days this time around, I left after the mandatory 2 days. The bill for our first born was very expensive and I did not want to have that happen again.