Please get your kids blood tested with Trial Net

I so hate this fricking disease. I can't even explain how much I am still pissed off my 5 year old now has type 1. So mad at the world still. I don't know how I'm suppose to get over this anger and sadness.

All of you with type 1, PLEASE get your kids tested with Trial Net. Don't be blind sided like I was and am. They are trialing medication to delay the onset of Type 1. They haven't stopped it but at least they can delay it. At the very least you can keep your babies from getting this shit for a little while longer.  

https://www.trialnet.org/

20 days for Solara to get my 5 year olds Dexcom set up approved

Solara called me on 24th to let me know that they were finally going to ship my 5 year olds Dexcom setup.  20 days of a 5 year old on insulin, though it is life saving it is also deadly.  Since starting insulin, of course, her pancreas is trying to work again and so she has been having a lot of low blood sugar readings.  If I had not already had her on borrowed parts she surely would have passed out or had a seizure by now.  

Have you heard of the Gvoke HypoPen

Have you all heard of the Gvoke HypoPen?  It is quite the amazing device that can replace the older Glucagon Emergency Kits that has a powder and a liquid you have to mix before injecting it into someone.  The Gvoke pen is premixed and easy to use. You pull the red cap off and push the yellow end onto the person's skin.  You can read about it here:

https://www.gvokeglucagon.com

For those who do not know what glucagon is, it is a hormone that makes the liver release stored glucose to raise a person's blood sugar.  It should be used when a person with Diabetes is having a low blood sugar seizure, unconscious or it can be used to help raise blood sugar when you are really sick and unable to eat.  After administration of glucagon a person should be rolled to their side because it can sometimes induce vomiting.  Someone needs to also call 911.  Glucagon Kits of all kinds, however, may not work if a person has had a series of low blood sugars and has depleted the glucagon in their liver.  You should call your Diabetes health care provider to have a plan in place for your diabetes and discuss what to do it glucagon does not work.  Some other options may include putting a glucose tablet in the cheek area or having a tube of frosting available.  

#Diabetes #Dexcom #TandemDiabetes #Type1Diabetes #dsma

I do not like diabetic supply companies

TWO HOURS I have been on the phone fighting with Solara Medical Supplies to get a damn Dexcom set up approved for my 5 year old and over TWO WEEKS fighting for its approval.  This is unacceptable and disgusting to think it is ok for any medical supply company to think it is ok for a 5 YEAR OLD to be on insulin and no cgm.  If it wasn't for me being diabetic and having diabetic friends this little girl would have had a seizure by now for sure. She has ran low for over 2 days now as her pancreas is honeymooning and making insulin!! UNBELIEVABLE the amount of bullshit us with type 1 diabetes have to go through to SURVIVE!! I AM SO ANGRY! #Solara #wecandobetter #WeNeedaCure #DSMA #Dexcom #Diabetes #Type1Diabetes #dsma

A new Keto Friendly Yogurt I discovered

I am always on the lookout for low carb or keto friendly food.  I try to eat mostly low carb because it makes my life with t1d easier and I am trying to find new foods for my 5 year old so she can eat more food with less blood sugar impact.  Amazingly she has always loved yogurt!  So I have been on the search for a low carb yogurt that she will also eat.  

My 5 year old Diabetic child is a super hero

My 5 year old was diagnosed with type 1 Diabetes just this month and it has been an extreme rollercoaster of emotions for me personally since I also live with type 1 Diabetes.  I have had many moments of tears bursting out of my eyes, to yelling and screaming at no one in my empty house to humbling moments when my little girl puts on an extremely brave face and tries a shot in a completely new area because we need to widen her shot rotation areas and I am crying inside but wearing my brave mom face. 

This is every diabetic person's worst nightmare because we do not wish our disease on anyone and especially not our children.  As a Diabetic I know the battles she will have to face and I know how deadly insulin truly is. My friend, who was a Diabetic Champion and was seriously kicking the disease's butt, lost her life because of a freaking low blood sugar and was home alone at the time.  This was before all of us had Dexcom share available. 

T1D Parents with T1D kids

I started another support group for those of us Parents with type 1 Diabetes who have type 1 Diabetic kids.  

https://www.facebook.com/groups/618462525964584/?ref=share

Have you been searching for Pump Wear Inc like I have been? Well I finally found her company under a new name.

Have any of you been searching for the Pump Wear Inc company like I have been?! Well today I finally found Julie DeFruscio PJ Creations LLC  Now I can order some awesome gear for my daughter and myself and some bands that are totally smooth, no buckles or velcro to be bothersome!  https://www.facebook.com/pjcreationsllc/

Also the website:  https://pjcreationsllc.com/

Diabetes Awareness Month

This year I have had type 1 diabetes for 21 years and that is more than half of my life. I was diagnosed with Type 1 Diabetes at 19 years old.  I try to be an advocate for every person living with type 1 Diabetes and to help stop the spread of misinformation and spread the correct information. I try to live with this wreched disease with as much positivity as I can and I feel like with age I have learned to do that much better, until a few days ago anyway.

This month my 5 year old daughter was diagnosed with type 1 diabetes and it has hit me like a ton of bricks and the amount of guilt I feel is soul crushing. Type 1 Diabetes is like an invisible disease that no one understands or can begin to fathom the complexity of it.  My ability to be positive and upbeat is wavering. My battle with this disease is just as hard as everyone else's, it's never easy, it never stops and it's never the same and I never get a vacation from it.