Spare a Rose - Save a Child

Thursday, January 29, 2015

Please take this survey for pre market artificial pancreas research from the University of Virginia

https://docs.google.com/forms/d/10NArdzhdzPEumWIZwnm5N9WtMfYFCKXq857qi4sDmPA/viewform?c=0&w=1

If you could choose a technology to completely manage type 1 diabetes, what would that look like?


Please take a minute to fill out this survey to help these UVA researchers.   

Wednesday, January 28, 2015

Why can't the news ever get anything right about Diabetes stories?

An Artificial Pancreas pump has not been released in Australia like the news reports said.  The Artificial or Bionic Pancreas is currently in patient trials in the US and it is hoped to be FDA approved within the next 8-10 years.  I hear hopes of more like 4 years, but I am trying HARD to not get too excited about that.  An artificial or bionic pancreas would not only detect an impending low but it will also treat the low, treat highs, cover carbs all without the pump wearer having to do anything besides change it out every three days and refill it with insulin and charge/change batteries.  The pump that was released in Australia is explained by Integrated Diabetes Services facebook page.

According to:
Integrated Diabetes Services
  "The Medtronic 640G insulin pump/CGM combination has been launched in Australia. (you'll notice that I don't call it an "artificial pancreas" because it's a damn long way from being an artificial pancreas)
The new system represents an important next step towards a fully-automated closed loop system. Whereas Medtronic's previous 530G system stops basal insulin delivery if the glucose sensor detects a low, the new 640G suspends basal if a low is ANTICIPATED. In other words, prevent/minimize the low rather than deal with a low that has already taken place.

Rumor has it that Medtronic is hoping to bring the device to European markets later this year and the US in 2016. Of course, hoping is one thing. Making it happen is another thing entirely."

 

Monday, January 26, 2015

FDA APPROVES Dexcom with SHARE!! = You can get Dexcom readings on your smartphone!


"Dexcom announced today that it has received U.S. Food and Drug Administration (FDA) approval for its Dexcom G4® PLATINUM Continuous Glucose Monitoring System with Share. The Dexcom Share receiver uses a secure wireless connection via Bluetooth Low Energy (BLE) between a patient's receiver and an app on the patient's smartphone to transmit glucose information to apps on the mobile devices of up to five designated recipients, or "followers," without the need for a dedicated docking cradle. These followers can remotely monitor a patient's glucose information and receive alert notifications from almost anywhere, initially via their Apple® iPhone® or iPod® touch and in the future on Android devices, giving them peace of mind and reassurance when they are apart. The "Share" and "Follower" apps will be available on the Apple App Store at no charge."

Click to read this exciting news!!

http://www.dexcom.com/news/fda-approves-dexcom-g4-platinum-continuous-glucose-monitoring-system-share

Sunday, January 25, 2015

A womans battle with Diabulimia

http://insulinnation.com/living/recovering-from-diabulimia/

A womans story about her battle with Diabulimia. Its unknown by many but it is real and support is out there if you are fighting this condition. Dont struggle alone, seek online support communities, there are people who can help you.

Story of the first human to ever be injected with insulin

http://www.pbs.org/newshour/rundown/how-a-dying-boy-became-the-first-to-beat-diabetes/

The story of the first human to be injected with insulin.

Tuesday, January 20, 2015

Four test strips

So we switched insurance companies at my work, easy right?  Wrong. Little does the general public know (people who are healthy and have a pancreas that isn't on a permanent vacation) that insurance companies are constantly dictating which brand of insulin we can take, which brand on glucose test strips we can use and which brand of insulin pump we can use.

I personally think this is the biggest crock of shit.  Why in the hell does an insurance company even have the power to override what my DOCTOR says I should do and use to treat my, MY, Diabetes?

Wednesday, January 14, 2015

Too darn tired

Yesterday was my third day on my infusion set.  I knew I needed to change it but sometimes I am lazy or just dont feel like changing it on time.  I thought I could still squeeze another day or until morning to change it out.  Well I shouldnt have let it go.

Monday, January 12, 2015

Diabetes and all the blood tests

I was just talking to one of my favorite phlebotomists (she hardly ever misses and its almost painless) today briefly about a recent experience with a different medical facility and how I had to talk her into using a butterfly needle to draw my blood. 

You see I have these tiny little veins and they like to roll around a bit and the one that gets used all the dang time likes to get calluses or something like that and it gets a bit tough.  Luckily it has since healed and it doesnt "pop" so hard when they poke it anymore. 

When I was pregnant that vein was really abused because of the high level of monitoring you have to have as a pregnant type 1 Diabetic and they used the same one because it seems to be the only one that wants to cooperate. 

Anyway I was talking to her about how I had to convince this phlebotomist to use the correct needle.  It seemed a bit crazy to me that she didnt believe me.  I said that if they didnt get the right one out she wasnt going to draw my blood after I asked very politely.  Those giant freaking needles they use for some people typically miss my vein and just thinking about them digging around in my arm trying to nail it makes me want to hurl.

 After 14 years of type 1, almost, I think I might know which one works out the best for me and for the person drawing my blood.   I actually have no issues with getting my blood drawn, just when they miss and start fishing around.  I get super nauseated and feel like I could pass out.  Well I dont have no issues, I despise I.V.'s holy hell do those suck. 

Do any of you have this issue or have to convince phlebotomists on the size of the needle they need to use on your arm? 

New 480 unit insulin pump from Tandem Diabetes!

www.tandemdiabetes.com/tflex/

Tandem Diabetes just announced it will begin offering a 480 unit insulin pump in the Second Quarter of 2015 as it was just cleared by the FDA!!  This is very exciting news for people who need a pump with a reservoir larger than 300 units and is currently the only pump in the USA that offers that large of a capacity! Check it out, go to the link above!

Thursday, January 8, 2015

Spare a Rose - Save a Child

Spare a Rose - Save a Child  You can begin giving donations on Feb 1, 2015

--I know this blog post is a bit ahead of time but I wanted to be sure to give people enough time to hear about it and be able to make a donation to a Diabetic child in need.--

SpareARose.com

Lack of access to insulin is the most common cause of death for children with diabetes in many countries around the world. In fact, in some parts of the world, the estimated life expectancy of a child who has just developed diabetes could be less than a year. *

 

This Valentine’s Day our community can continue to help change that.

 

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