Thursday, December 18, 2014
Just wanted to say another huge thanks to Tandem Diabetes for their awesome customer service. I am on my 3rd pump replacement since August 2013. This is however the first one I have cracked the screen on. The first one shut down unexpectedly when I plugged it in, the second one the screen started losing pixels and this one I dropped.
Tuesday, December 16, 2014
Dexcom CEO Terry Gregg and Jay Skyler MD PhD were interviewed by Steven Greer MD about the "rouge cowboy programmers" who have decoded their data for the Nightscout project.
Dexcom I understand where are you are coming from as a company that has to follow the FDA to a tee and go through all the hoops to get your products FDA approved. What I dont understand is why you needed to call the people & parents of children with Diabetes rogue cowboy programmers? This is totally uncalled for and a great way to insult the audience you are selling your products to. We understand it took way too long to get the Dexcom Share approved by the FDA but that is not the fault of the people that collectively say #WeAreNotWaiting Not everyone uses or like Apple products, you have left out the Android market all together with your Share product...plus you didnt make it rechargeable so that parents/loved ones can carry the Share around outside of the home. Didnt you realize that was something your audience was screaming for?
Our Diabetes doesn't turn off when we leave the front door to our home. Diabetes is with us everywhere we go. We need a product that can go with us everywhere we go to help us stay safe with Diabetes. Fast track the latest Dexcom product, make it portable to be sent to all Apple and Android devices. You cannot blame parents for making this sort of thing available NOW and not wait any longer. You dont have to congratulate the people who did this for their hard work but you sure dont need to go on bashing them either.
Helicopter parents?! Really? Dr. Skyler do you have a child with Diabetes? I do not have a child with Diabetes but I have Diabetes myself. I know how quickly and unexpectedly my blood sugar can crash without notice, I can only imagine how fast that can happen for a child with endless amounts of energy! I read the stories of the parents who are using the Nightscout system and it has changed their lives and sometimes even saved their child's lives. These "helicopter" parents are trying to in fact help their child live as normal of a life as possible with LESS intervention. Instead of checking their blood sugar 1000 times a day and asking their child if they feel ok, they can just LOOK and see the answer. Do you blame them? Parents of children with Diabetes are the only ones who are going to be constantly aware of their childs' blood sugar readings. Schools cant make sure they keep an eye on a kids Dexcom, nor can school nurses. They have hundreds of other kids to care for and teachers are busy trying to teach a room full of kids and keep them under control. There is no reason for any medical professional to be so callous and call parents of Diabetic kids "helicopter" parents. No reason at all. They should have interviewed Dr. Edward Damiano, who does have a Diabetic child and is working on the Bionic pancreas project. I can bet you he wouldn't call anyone a "helicopter" parent!!
By the way Mr. Gregg the CGM in the Cloud group has over 9,000 people I really would suggest not upsetting them since you hope to sell your products to them. The Share probably isn't selling the greatest and that's kind of Dexcom's fault for not making it do what the people who want to use it do (be portable and Android friendly). In the business world its just not good practice to ostracize a very large portion of your customers/the people who spend their hard earned money with your company. I think Dexcom needs to offer an official apology for their misstep in voicing their opinion on the Nightscout.
Since the comments for this video have been disabled, let your voices be heard here! Leave your comments for Dexcom and how this video has made you feel. Please do not use profanity, lets all be as professional as we can even though this video has upset a lot of you.
Monday, December 8, 2014
Friday, November 21, 2014
Thursday, November 20, 2014
So Im changing my infusion set this morning and my Dexcom sensor expired 2 hours ago so I restarted it. No big deal right? Yeah I yank my set and there is a spec of puss in it. Not so great but its not like thats never happened. Put a new set in get it all hooked up and Dex is ready to calibrate. Ok great! Not great. My blood sugar is 500 and I had no clue besides my stomach feels kinda crappy. This is why my Dexcom is so so very important. I had no idea I was 500! I mean come on holy crap 500!!!!! Freakn wnderful. So I just took a giant correction and now I cant calibrate Dex until Im under 400 since you cant enter a number over 400. Great way to start the day. Now I feel like barfing and I have to drink a ton of water.
Wednesday, November 19, 2014
Last day to take the BIG BLUE TEST and trigger a donation to help others in need to get their diabetes supplies!
TODAY is the last day to take the Big Blue Test! Every time you do anything to move around and you have Diabetes or not, log on enter your info and hit submit!
Go here: http://bigbluetest.org/take-the-big-blue-test/
Each Big Blue Test entry you log between October20th and November 19th triggers a donation on your behalf to nonprofit groups that are providing life-saving supplies, services and education to people with diabetes in need. Taking the Big Blue Test is easy.
The current count is:
27679 and they need to get to 35000!!
Tuesday, November 18, 2014
This, right here is what I do every time. This is not my video, I am sharing it from youtube.
So the owner of PortaPocket sent me some of her products to try. I got the small and medium sized pockets and 12 and 18 inch bands.
Call me weird but it works and after about 3 days you dont notice it at all anymore. Plus when I use my ankles you would have no idea I had a pump on me.
<<===This is the small pocket on a 12" band held on with velcro. The velcro makes it easy to unattach from your leg. It holds my t:slim pump very well!
Laurie Schwartz is a mother of a type 1 Diabetic son and on day one of using the CGM in the cloud set up believes it saved her son from a very close call.