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Friday, April 28, 2017

More wonderful stories and a video about Mandy.

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Some articles about Mandy and all the amazing things she did.

http://www.indystar.com/story/life/2017/04/24/mandy-harris-saved-700-riley-babies-now-her-colleagues-crochet-700-jellyfish-preemies-her-memory/100611626/

https://m.facebook.com/story.php?story_fbid=10156450073394852&id=9812439851

Wednesday, April 12, 2017

I hate you Diabetes

1 comment:
Right now I am mad, I am so damn mad, why is there still no cure for type 1 Diabetes? How many more people have to die?  The treatment is still the same as 100 years ago, insulin injections, unpredictable stupid ass freaking insulin injections/pump/whatever.  I hate this stupid DAMNED disease.  I hate how it gets under my skin and makes me so scared at times, I hate how I have to worry about going low alone having a seizure and possibly dying.  I hate worrying Ill go low and my child will find me dead.  I hate worrying about my brothers with t1d, my friends, my family members all living with this stupid damned disease. I hate the terribly mean comments I am subjected to because I have Type 1 Diabetes, I hate the shitty things people say about food giving people Diabetes, I hate that it played a major role in ripping my grandpa away at a young age, I was 7, he was my father figure for the first 4 years of my life, it ripped Mandy away, it takes childrens lives and what do we have to treat it?  Still just insulin, crappy ass unpredictable insulin.  Im mad, Im just really freaking mad.  I know there are worse things out there, I get that, but I live with this stupid ass disease so I have the right to be mad and to vent my feelings.  Can we get a freaking cure yet? Or at least a better treatment? I know things are coming but damn it all to hell its just too damn late.  

Tuesday, April 4, 2017

How to NOT become an identity theft victim--OFF Topic Blog post

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This blog post is completely off topic, as you can tell by the heading.  Life has thrown some major curve balls at me lately and the Diabetes Online Community has been shaken to the core with Mandy's passing.  I don't really feel like even talking about Diabetes much right now.  Diabetes has stolen Mandy's life and changed the course of her family's lives forever. I am so mad about Diabetes and mad that we are STILL waiting for a freaking (trying not to swear hear because I am so mad) cure.  So I don't want to talk about it anymore for a while.

During all this stupid curve ball crap my identity was stolen.  YEAH its not fun and I have learned a LOT and I want to share this all with you so that you do not become an identity theft victim yourself.  Don't be as oblivious as I was, thinking that living in cornfieldville Illinois was safe!  So hello whoever you are identity thief,  there is a special place in Hell for you when you die! 

I will list the things you all need to do right now, DO NOT DELAY!

  1. Run your own credit report EVERY SINGLE YEAR for free on annualcreditreport.com otherwise these identity thieves will run it and then have all of your credit history in their hands.  They can then answer all challenge questions properly and get credit in your name, use your current credit cards and even increase your credit limit on any cards you have.  They typically won't spend the money to run your report if you have already done it. 
  2. CANCEL ALL DEPARTMENT STORE CREDIT CARDS or set up a password for each card!!  All these people need is a fake ID card and your social security number and they can spend on your card.  
  3. LOWER your credit limit on the ONE credit card you want to keep and also set up a password, DO NOT let them use your mothers maiden name, that info is available all over the internet, just search for yourself, you will be blown away at what is available.
  4. Sign up for all the free credit monitoring websites before the identity thieves do.  This includes: www.creditkarma.com www.creditsesame.com www.quizzle.com www.credit.com www.nerdwallet.com  After these people sign up in your name they can monitor all your credit cards, loans, mortgage, etc and if you cancel a card and get a new on they will also see that information
  5. Go to every single website you can find your name and information on and follow their steps to remove your name from their website
  6. Do all these things for your spouse or significant other as well
  7. If you have a debit card with a large daily limit get it lowered as low as you can handle
  8. Take all these things I have told you very seriously as this is what has happened to me and it is a disaster.
  9. Pay for some sort of credit monitoring service for you and your whole family.
  10. If you are no longer using a credit card, cancel it because if you aren't watching it they will use it.
  11. If your identity has been used IMMEDIATELY put a fraud alert on your credit file.  You can do that by calling the credit bureaus and using their automated system to put an alert on your file.
  12. If it has been stolen, call your local or county police to file a report.   After you have your report you can freeze your credit for FREE, because after they have gotten your ENTIRE CREDIT HISTORY off the internet they can forever get credit in your name, because they KNOW all the challenge questions based off your credit history.  
  13. Call the Drivers License Facility and make sure no one has come in claiming to be you to get a duplicate license, MOST of these people just fake them and of course use their own picture.  
  14. Call the Social Security Office to make sure no one has requested a duplicate card
  15. Any fraudulent inquiries or new credit in your name, call that company immediately to tell them it was not you and to freeze that account and to start working on getting it removed from your credit file and removing the inquiry on your credit report.  
  16. OPEN ALL YOUR MAIL!  I got 2 credit cards in the mail that I didn't apply for, if I had not opened that mail I would have never known my identity was stolen. I called them immediately, found out what happened and put the fraud alert on my credit files.
  17. When my brain starts functioning again I will let you know what else I have had to do!

Wednesday, March 29, 2017

Memorial letter about my dear friend Mandy.

1 comment:
My name is Megan Druien, I am also a Type 1 Diabetic Warrior.  I met Mandy many years ago around 2008 or 2009 over email when I first went on my insulin pump and was having a lot of trouble adjusting to wearing it all the time.  Mandy’s Aunt Debbie suggested that I email her niece to see if she could offer me some advice.  Debbie told me what she did for a living and I was like, wow, I am not sure I can email someone with such an impressive title!  She was incredibly generous and helpful to me and did not really know me at all.  We kept in touch and emailed each other back and forth after that.  She was another person with type 1 Diabetes that I could talk to about the daily struggles it comes along with.
Fast forward a few years and we were both on facebook and I sent her a friend request right away!  I was part of this wonderful Diabetic support group for Moms, I told her about it and of course she wanted to be added to the group.  We are a tight nit group of women who lean on each other for support and advice.  We all love each other like family.  All of them would be here today if they didn’t live so far away. They have asked me to send their love and to let you know they wish they could be here today.  Mandy was a great addition to the group and even helped several of the ladies with their children when they started having seizures or other neurological problems.  She was always so generous with her time and more than willing to share her knowledge.  She made friends with all of the members in that group and the other groups we were in together right off the bat.  She even went out of her way to help transition other people with Type 1 into a different diet to manage their Diabetes.
Mandy was a Warrior, she fought Diabetes better than most while managing a very demanding career, two children and a husband who she loves dearly.  She would help everyone and anyone in the support groups she was in.  She was so very humble and did not want any extra praise, even though in her career she saved many babies, she never asked for attention for the amazing things she accomplished. 
I want you to know how much Mandy means to the online Diabetic community because it is so very important for you all to know how deeply she will be missed by them and me.  She was a great friend to all of us and has changed many of us with type 1 forever for the better. 
She has touched so many lives as the Pray4Mandy page and its 6000 plus followers have proven. I will continue to be an advocate for Type 1 and I will fight even harder for Mandy.
Mandy is an amazing woman, wife, mother and Doctor. She has changed the world for better and I wish she was here to see the difference her life has made and to know just how many people really love and care for her even if they never really met her.

Sunday, February 26, 2017

Finally picked up two new glucagon emergency kits.

No comments:
Finally picked up my 2 glucagon kits and 57.00 later I feel much better having unexpired glucagon. Glucagon, for those who don't know, is something anyone who takes insulin should have on hand. It is used in the event I should pass out from low blood sugar and/or start seizing. If you know me or are my friend or know someone else who uses insulin, please do us both a favor and learn how its used.  I carry a glucagon kit in my purse. Someone you love just might need you to save their life some day. Its up to you to learn how to use it in advance.

http://www.lillyglucagon.com/#tools

Android app

https://play.google.com/store/apps/details?id=com.lilly.ignitehealth.glucagon

Apple app

https://itunes.apple.com/us/app/glucagon/id553314007?mt=8&ign-mpt=uo%3D4

I also wear a medic alert bracelet every single day from www.roadid.com with the medic alert symbol add on band on the side.

Are you on insulin and if you are do you have a glucagon kit? 

Thursday, February 23, 2017

Where do you store your Glucagon Emergency Kit?

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Have you gotten your Glucagon prescription yet?  Do you know where your glucagon is?  Tell me where do you store your Glucagon and have you told everyone where it is at?

I realized mine were all expired, so I got a new prescription.  I keep all my old kits though, just in case.

I keep one on my husband's bedside table, one in my purse and one in my kitchen cabinet with our vitamins, my in use pump supply boxes, pain meds etc etc.

Where do you keep yours?
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Some benefits of wearing a CGM on your body 365/24/7

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I wear a Dexcom CGM or continuous glucose monitor.  I chose Dexcom because their accuracy is the best for me and the range/distance of the sensor transmission is the best available. I am asked this question quite often so I will list some pros and cons for me.


Pros:
  1. I know what my blood sugar is or is near at all times of the day and night
  2. I can drive my vehicle without as much worry about going low suddenly
  3. I can sleep much better knowing that my Dexcom should catch my lows
  4. I can react to a high or low much sooner and take corrective actions
  5. I know what the food I eat does to my blood sugar and how quickly it affects me
  6. Dexcom makes me much more responsible for the blood sugar readings and helps me to say  no to foods I know I just cannot conquer
  7. I can wear it for longer than 7 days and just keep restarting it 
  8. It gives me much more confidence living with t1d because I can look at my Dexcom and see where my blood sugar is trending.

Tuesday, February 21, 2017

Dexcom’s G6 Sensor Shines in Early Accuracy Study

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"Earlier this month, Dexcom shared compelling new details on its longer-wear, less calibration G6 sensor and its partnership with Verily to develop a bandage-like continuous glucose monitoring (CGM) device. The G6 sensor is expected to launch in 2018, while the first-gen Verily sensor will launch in late 2018, with a second-gen version coming as early as 2020. Read on for the new details!"

Read the whole article  here from 11/25/16:

https://diatribe.org/dexcom-g6-sensor-shines-early-accuracy-study?utm_source=facebook&utm_medium=organic

Saturday, February 18, 2017

Glucagon tutorials online and smartphone apps for you to download

No comments:
Glucagon emergency kits are something every person taking insulin should have. Glucagon is what is used to save someone who is having a seizure from an extreme low blood sugar or hypoglycemia. If you are taking insulin and do not have a kit please call your doctor and get some. Ask them to write you a prescription for at least 2 or 3. One for your bedside, one to carry with you all the time and one on your main floor of your home.

Glucagon Tutorial by Danica!

https://youtu.be/E9dsdx0ceCo

Friday, February 17, 2017

What the public needs to be informed on about TYPE ONE DIABETES

1 comment:
Low blood sugar or hypoglycemia can happen to anyone with type 1 Diabetes taking insulin. Too much insulin, incorrectly guessing a dose, insulin absorbs faster than usual, exercise, physical activity are all things that can cause a low blood sugar. 

What happened to my friend and doctor Mandy could be any of us and we all know that but we all thought it would never happen. 

Never in a million years did I think this would happen to Mandy with her amazing control she gained following lchf. 

I got brave and put my Dexcom sensor on my calf.

No comments:
I keep reading how people are using their calf for their Dexcom sensor placement. I look at these pictures and cringe. It looks like it would be horribly painful.

Today I decided what the heck, I wont know until I try it.

I warned my 4 yr old watching me that I might scream, hahaha!  

No screaming involved! I did it and it didn't hurt. I found the fattiest part of my calf and I have seriously got chicken legs. Like they could pass for a 10 year olds legs.  I put it on right below the knee on the inside of my leg.

Im waiting for my 2 hour start up so I dont yet know if it will work or not.  I will keep you posted!  I'll also post a picture when I get out of my pjs.  Lol!

Warning graphic image of my chicken leg below:



Another child needs your prayers as he went undiagnosed with t1d.

No comments:
Another family that needs prayers. This boy went undiagnosed, ended up in dka and now has suffered brain damage. 

Stay updated on Mandys progress.

No comments:
Keep up to date on Mandys progress and post your comments and prayers to her family.

Thursday, February 9, 2017

A gofundme page for Mandy.

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For those of you following Mandys progress and have asked her family what we can do to help.

Her family has set up a gofundme page.


https://www.gofundme.com/pray4mandy

Wednesday, February 8, 2017

Keep praying!

No comments:
Today they are taking Mandy off all sedation!! Please pray extra hard that she wakes up and is ok!!!

https://www.facebook.com/pray4mandy/

Come on Mandy you can do it, we are all pulling and praying for you!!

Please leave me your comments, it helps keep me motivated!

Tuesday, February 7, 2017

Do you have your Diabetes emergency plan in place and have you rehearsed it?

5 comments:
No one is exempt from having a Diabetic emergency. No one is so "good" at Diabetes that they should not have an emergency plan in place.

Do you have a glucagon emergency kit in your home and everyone knows where it is and how to use it?

I know this will not save everyone especially if you are alone but I cannot tell you how many people tell me they dont have any or know what it is.  Do you have someone you can call when you have low blood sugar if you are alone?

A few years ago I didnt own any glucagon kits. Then I got married and had kids.  I have one on my husbands bedside table, one in my purse at all times and one in kitchen cabinet.

Please keep in mind glucagon may not work if you have drank too much alcohol or have been through a lot of lows lately.

Saturday, February 4, 2017

Life with Type 1 Diabetes isnt always as black and white as we lead ourselves to believe. Please pray!

3 comments:
A few days ago a fellow type 1 friend and person Im related to by marriage experienced something we all fear the most. She was found unresponsive and not breathing by her beloved husband. He performed cpr on her until the ambulance arrived, he did everything he could to help her. She also has two young children that she loves so very dearly and sisters and parents. She is currently on life support and heavily sedated to help let her brain activity calm down, they are hoping to remove the ventilator today and slowly reduce sedation to see if she wakes up. Please pray she wakes up.

She had been fighting a cold or virus and was needing a lot more insulin than normal. She also wore a Dexcom, so dont ever rely on your cgm to save you, follow your instincts. Do not ignore your instincts they are very powerful.

Thursday, February 2, 2017

Dexcom G4 vs G5

2 comments:
So I got another G4 in December because in my experience they last over a year.   My current one is from December 2015.  I am on the fence as to what to do the next time around G4 or G5?  I dont have any Apple products so I am still holding out hope the Android App will get FDA approval this year.  I am also up for a new cell phone in August and a new pump.  UGH this year will be expensive to say the least.

Those of you who have made the switch are you happy?  Anyone make the switch and not use an Apple phone?

I am not sure how much it is worth it to go to G5 and be forced to order new transmitters every 6 months.....

Anyone know if or when Tslim X2 will be a receiver for Dexcom G5? I am planning on getting another pump from Tandem this year.  I just dont like any of the other options, Animas might go under and the delivery speed is too fast.  I dont like Medtronic pumps and how they feel like they can force others out of insurance coverage (UHC).  Plus I HATE Medtronic's CGM.  I will always and FOREVER be a loyal Dexcom user unless something better comes out.

I cannot live without my Dexcom, at all, period.

Let me hear your thoughts and opinions, please! 


Please leave me your comments, it helps keep me motivated!

Thursday, January 5, 2017

I appologize for being away for so long....

No comments:
I have been M.I.A. for quite a while now.  We now have 2 children, one nearly 4 and the other 3 months old.  They have kept me so busy that I have not really had time to even think about blogging.

Apparently while I was gone my blog has taken off and I am getting a huge number of views!  I was shocked!  Thank you to all of you who have been reading my blog.

I had our second daughter at the end of September.  She was born via repeat c section and very healthy and nearly 10 pounds.  She was 2 weeks early due to my pre ecclampsia getting worse and the baby's heart rate being too high. The c section took me much longer to recover from this time. I was in pain for many weeks longer than the first time.  I also had the awesome chance to experience tremendous trapped intestinal gas pain again (I have a wonderfully slow, too long large intestine) and it took 5 days to get out again.  Intestinal gas pain is so much worse than a c section, hands down.  My surgery healed wonderfully, not even a bruise but the internal pain took long to get better.  I suppose it was because they had to pull an almost 10 pound baby out of my small body.  I was HUGE!  I did not let the hospital keep me 5 days this time around, I left after the mandatory 2 days.  The bill for our first born was very expensive and I did not want to have that happen again. 

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