Like I am a Diabetic Warrior on Facebook
Thursday, December 18, 2014
Tuesday, December 16, 2014
Dexcom CEO Terry Gregg and Jay Skyler MD PhD were interviewed by Steven Greer MD about the "rouge cowboy programmers" who have decoded their data for the Nightscout project.
Dexcom I understand where are you are coming from as a company that has to follow the FDA to a tee and go through all the hoops to get your products FDA approved. What I dont understand is why you needed to call the people & parents of children with Diabetes rogue cowboy programmers? This is totally uncalled for and a great way to insult the audience you are selling your products to. We understand it took way too long to get the Dexcom Share approved by the FDA but that is not the fault of the people that collectively say #WeAreNotWaiting Not everyone uses or like Apple products, you have left out the Android market all together with your Share product...plus you didnt make it rechargeable so that parents/loved ones can carry the Share around outside of the home. Didnt you realize that was something your audience was screaming for?
Monday, December 8, 2014
Friday, November 21, 2014
Thursday, November 20, 2014
So Im changing my infusion set this morning and my Dexcom sensor expired 2 hours ago so I restarted it. No big deal right? Yeah I yank my set and there is a spec of puss in it. Not so great but its not like thats never happened. Put a new set in get it all hooked up and Dex is ready to calibrate. Ok great! Not great. My blood sugar is 500 and I had no clue besides my stomach feels kinda crappy. This is why my Dexcom is so so very important. I had no idea I was 500! I mean come on holy crap 500!!!!! Freakn wnderful. So I just took a giant correction and now I cant calibrate Dex until Im under 400 since you cant enter a number over 400. Great way to start the day. Now I feel like barfing and I have to drink a ton of water.
Wednesday, November 19, 2014
Last day to take the BIG BLUE TEST and trigger a donation to help others in need to get their diabetes supplies!
TODAY is the last day to take the Big Blue Test! Every time you do anything to move around and you have Diabetes or not, log on enter your info and hit submit!
Go here: http://bigbluetest.org/take-the-big-blue-test/
Each Big Blue Test entry you log between October20th and November 19th triggers a donation on your behalf to nonprofit groups that are providing life-saving supplies, services and education to people with diabetes in need. Taking the Big Blue Test is easy.
The current count is:
27679 and they need to get to 35000!!
Tuesday, November 18, 2014
This, right here is what I do every time. This is not my video, I am sharing it from youtube.
So the owner of PortaPocket sent me some of her products to try. I got the small and medium sized pockets and 12 and 18 inch bands.
Call me weird but it works and after about 3 days you dont notice it at all anymore. Plus when I use my ankles you would have no idea I had a pump on me.
<<===This is the small pocket on a 12" band held on with velcro. The velcro makes it easy to unattach from your leg. It holds my t:slim pump very well!
Laurie Schwartz is a mother of a type 1 Diabetic son and on day one of using the CGM in the cloud set up believes it saved her son from a very close call.
Friday, November 14, 2014
INFUSION SET SAFETY NOTIFICATION Select Lots of Unomedical Infusion Sets Comfort™, Comfort™ Short and Contact™ Detach
INFUSION SET SAFETY NOTIFICATION
Select Lots of Unomedical Infusion Sets
Comfort™, Comfort™ Short and Contact™ Detach
November 13, 2014
Unomedical, a manufacturer of infusion sets used by a number of insulin pump companies, has recently contacted us about a potential safety issue regarding their Comfort™, Comfort™ Short and Contact™ Detach infusion sets.
Unomedical states that there have been reports of the tubing becoming detached at the connect/disconnect location on these infusion sets (images below). While we are told the number of these reports remains low, we wanted to make our trainers aware of the potential issue and that we have notified all our affected customers.
I got this in my email the other day and wanted to be sure to share it! Go to CVS, Kroger, Walgreens, Rite Aid, Target or Walmart to get this discount!
Click here to go to my JDRF Walk to Cure Diabetes Donation Page
Monday, November 10, 2014
Involves models MMT-368, MMT-368T, MMT-371, MMT-371T, MMT-373, MMT-373T, MMT-377, MMT-377T, MMT-378, MMT-378T, MMT-381, MMT-381T, MMT-382, MMT-382T, MMT-383,MMT-383T, MMT-384 and MMT-384T, MMT-862, MMT-862T, MMT-863, MMT-864, MMT-864T, MMT-865, MMT-866, MMT-866T, MMT-873, MMT-874, MMT-874T, MMT-875, MMT-876, MMT-876T, MMT-883, MMT-884, MMT-885, MMT-886, and MMT-886T infusion sets.
The article can be read here: http://diabetes247.org/2014/11/10/medtronic-safety-issue/
Thursday, November 6, 2014
Want the chance to win a FREE Fitbit or Jawbone fitness tracker? Well you're in luck, because diaTribe® Gets Fit by giving away ten fitness trackers!
Go to: diatribe.org/r/255a6465
"New Dexcom software achieves critical milestone in measured accuracy for continuous glucose monitoring
SAN DIEGO--(BUSINESS WIRE)-- Dexcom, Inc., (NASDAQ:DXCM), a leader in continuous glucose monitoring (CGM), announced today that the U.S. Food and Drug Administration (FDA) has approved new software for the Dexcom G4® PLATINUM CGM. The new Software 505 features the same advanced algorithm as used in artificial pancreas research around the world. The software will impact the performance of the Dexcom G4 PLATINUM, already considered the most accurate CGM system on the market today. The software will be made available free of charge to adult patients using the Dexcom G4 PLATINUM."
Tuesday, November 4, 2014
This is why you should take the Big Blue Test
If you have Diabetes or you know someone who does you have to, yes HAVE to take the Big Blue Test. This is all it takes to do:
Join the movement by taking the Big Blue Test right now. Each Big Blue Test entry you log between October 20th and November 19th triggers a $1 donation on your behalf to nonprofit groups that are providing life-saving supplies, services and education to people with diabetes in need. Taking the Big Blue Test is easy.
1. Test your blood glucose. If you do not have diabetes, you can skip this step.
2. Get active. For 14 to 20 minutes, get up and get moving. You can , walk, run, clean the house, swim, tap dance…whatever!
3. Test again. On average, Big Blue Testers seen their blood glucose level drop 20% after 14-20 minutes of exercise.
4. Share your results. Answer the questions in the right column of this page. And don’t forget to talk about your experience on social media.
Now go here: http://bigbluetest.org/
Wednesday, October 29, 2014
Tuesday, October 28, 2014
WHAT. A. JOKE. They use to cover them both equally, what happened?!
Wednesday, October 22, 2014
Tuesday, October 21, 2014
We voted them into office. Tell them to #Vote4DM.
There are three diabetes bills that are currently in play up on Capitol Hill.
S539/HR1074 – National Diabetes Clinical Care Commission Act (Coordinate)
S945/HR1274 – Access to Quality Diabetes Education Acts (Diabetes Education)
S2689/HR5644 – Medicare CGM Access Act of 2014 (Cover CGM)
PLEASE Go here to tweet! http://www.stripsafely.com/the-twitter-page/
Monday, October 20, 2014
"SAN DIEGO, Oct 20, 2014 (BUSINESS WIRE) -- Dexcom, Inc. DXCM, +1.16% a leader in continuous glucose monitoring (CGM) for patients with diabetes, announced today that it has received U.S. Food and Drug Administration (FDA) approval for its CGM remote mobile communications device: Dexcom SHARE"
Info live now on Dexcom's website!
Friday, October 17, 2014
I may be a bit absent for a while as tomorrow we are putting our 13 yr old Boxer to rest. He has had Diabetes since March 2013 amongst some other health issues and due to his old age and partially Diabetes I think, his health has just crashed this past month, well really this past year. Im a total wreck over this and Ive cried all day for the most part, so if you leave me comments and I dont get them approved or message you back its because I cant read my phone screen while crying like a baby. I cant even talk about it anymore.
Wednesday, October 15, 2014
I did the information online but it didnt work so I ended up calling them and they did everything over the phone with me, gave me all the numbers for the ID and the bins and all that jazz then mailed me the actual card in the mail.
My co-pay for Humalog and Novolog are $50.00 for every refill. Humalog/Eli Lilly doesnt offer any programs for people with Health Insurance/people who pay an arm and a leg to have health insurance. Novolog/Novo Nordisk does offer a discount card and I think its wonderful that they are willing to help their customers out with their copays. So now I pay $25.00 copay for every refill. It may only seem like a small amount but when you add up a whole year, I save $300.00 After you pile that on the over $10,000 our family pays for health care every little bit saved helps.
So if you are on the fence about switching and need to save some money I highly recommend this program and their customer service has so far been really great!
Novolog savings card: http://www.novolog.com/NovoLogSavings/NovoLogSavings.aspx
Interview with Harvard’s Professor Doug Melton, the Harvard scientist who discovered how to generate functioning beta-cells from stem cells (reported on last week). More hope for a type 1 Diabetes cure.
Interview with Harvard’s Professor Doug Melton
Scientific research is painfully slow and hard. Fifteen years ago we began our work in the lab with stem cells and a few weeks ago we finally discovered how to produce functioning beta-cells.— Professor Doug Melton
Here is the link to the article:
Monday, October 6, 2014
1. I cut a piece of smith and nephew opsite flexifix the same exact shape as the built in white tape except a little bit bigger all the way around. I have yet to make a pattern for this but I will next time and post pictures.
2. I still wipe my skin with an alcohol wipe or two to get any sort of oil or lotion off my skin from bar soap or body wash or whatever product you use as it may leave a residue on your skin.
3. Apply this oval shaped tape to the skin and I personally hold my hand over it to help warm it up and adhere better. I do not cut a hole in this tape for the sensor wire, I just poke right through it.
4. Pull white paper off the built in adhesive off the Dexcom sensor applicator and put it over top the oval you just applied to your skin. Push the plunger and apply your sensor as usual.
5. Then I use my previous method of taping around the sensor. You can find that post here: http://typeonediabeticwarrior.blogspot.com/2013/09/how-i-tape-down-my-dexcom-to-get-more.html
Tuesday, August 19, 2014
Tuesday, August 12, 2014
Wednesday, August 6, 2014
ANYWAY, Tandem Diabetes is sending me a box of reservoirs to help me out!? Yeah you read that right, they are sending me a box, FREE, because I am too cheap/have too many expenses with Diabetes to afford or want to order more supplies. Bravo to Tandem for helping me out, I really appreciate it and am really shocked they are going to send me a box free. FREE! Who does that? Tandem Diabetes Care does!
Wednesday, July 30, 2014
Urge Your Senators to Co-sponsor S. 2689 to Ensure Seniors with Diabetes have Access to Continuous Glucose Monitors
Check out @JDRFAdvocacy's Tweet: https://twitter.com/JDRFAdvocacy/status/494540500557651968
If ONLY my brain would remember that after I change a profile to CHANGE IT BACK! Oye vey I changed my profile the other day when I was outside chasing my 18 month old child around because I just could not keep my bg up. So I changed it to my "yard work" profile which is the lowest basal setting possible (0.1) for 24 hours. YEAH that is soooooooooo not enough insulin for normal activity. My bg just kept creeping up and up and I was like man what is wrong so I just kept correcting. Im a dingbat, totally forgot I changed profiles. From now on I am just going to run temp basals when doing anything physical or stop insulin all together because at least then it keeps beeping at me.
Monday, July 28, 2014
Tuesday, July 22, 2014
Check it out! http://www.tcoyd.com/national-conferences/desmoines-ia-2014.html
View the Brochure here: http://www.tcoyd.com/PDF/des-moines-2014-patient.pdf
Kerri Sparling will be there, speaking at some of the meetings and hopefully I will get a chance to meet her!
Wednesday, July 16, 2014
Tuesday, July 15, 2014
Just a random thought. When I have a painful insulin pump infusion set site it has this way of putting me in a really bad mood. Is it because its a constant physical pain of being Diabetic? I mean being Diabetic doesnt really "hurt" per say most of the time. It can and does make you feel like crap sometimes but I guess having this stupid plastic cannula in my body all the time does leave a pretty good chance of it hurting sometimes. Today my infusion site is killing me, like a stabbing burning pain in my side/hip area I have it in. Its been hurting since I put it in the other day but yet due to the extreme cost of pumping I am torturing myself with this pain and changing it out is kind of like letting Diabetes win. So I think I will give in today and change it when I go let my dogs out. I hear so many other pumpers say they never have infusion set pain and I guess they are more "lucky" than I am in that area. I just dont understand how their infusion sets never hurt? Do any of you out there have painful sets at times? Anyone else just leave it in and deal with the pain because you dont want to give in? Maybe Im just crazy.
Monday, July 14, 2014
This is why I ask so many of you, my family and friends to donate to our team every year to help fund things like this. Some day I and millions of others can live a more normal life with Diabetes with LESS fear of complications, low blood sugar, high blood sugar, count carbs, etc etc. Its not a cure but its pretty damn close to being cured while wearing a pump and glucose sensor until a real cure can be found.
Please take a moment to read the article at the link below, for me, my brothers, my family members, my friends, you, your friends, and your family members with Diabetes.
This year our team raised over $3,000 for JDRF! If you feel so inclined to donate yourself to my team, you can do so here: http://www2.jdrf.org/site/TR/Walk/Chapter-EasternIowa4218?px=1251666&pg=personal&fr_id=3287
Thursday, July 10, 2014
Here is Kerri's blog post: http://sixuntilme.com/wp/2014/07/10/cgm-cloud-part/
If you are Diabetic or the parent, grandparent, spouse of a person with Diabetes and they are on the Dexcom G4 this is most definitely worth reading, I would call it a must read.
Friday, June 20, 2014
AHHHHH!!! I AM SCREAMING right now!
So my Walgreen's Pharmacy, who should be considered saints, called these jack wagons AGAIN and asked them WTF is going on? My card is good until 12/31/2015 so why is it not working? They told her that SOMETIMES they just cancel cards and dont tell anyone or give explanations?!
Thank you so very much to those who donated and those who walked on our team this year! I appreciate all of your hard work and every dollar you spared to help fund a cure and better treatments for Type 1 Diabetes.
Friday, June 6, 2014
Thursday, June 5, 2014
Potential Issue with ACCU-CHEK FastClix Lancing Devices for Use with ACCU-CHEK Aviva Plus Meters — Needles May Retract with Delay or Not Fully Retract After Use
Read about it here: https://www.accu-chek.com/us/fastclix-alert.html
"Medtronic is leading the charge on new diabetes devices again, with a first-of-its-kind combo device launched in Europe that brings a continuous glucose monitoring (CGM) sensor and insulin infusion set together into a single device with combined insertion capability!"
Read about the information here on Diabetes Mine: http://www.diabetesmine.com/2014/06/newsflash-new-medtronic-device-combines-cgm-sensor-and-insulin-infusion-set.html
For me personally I am not sure if I like the idea of changing my sensor out every three days. It doesnt seem very cost effective considering I can get two weeks out of one Dexcom Sensor?...... Im more into waiting (ever so impatiently) on a dual chambered pump and can also bring up my BG without my intervention (the closed loop artificial pancreas project). That system cannot get here fast enough.
Friday, May 30, 2014
Are you a Facebook user who also has been diagnosed with Type 2 diabetes? If so, you may be interested in participating in a University of Virginia study to understand how people with Type 2 diabetes take care of their health. The researchers intend to use the information gained from the study to help better design technologies, such as mobile apps and self-management systems, for people with Type 2 diabetes.
Tuesday, May 27, 2014
So if you use an in network doctors office, facility, hospital WHAT the hell ever, your insurance automatically knocks the price down to what that facility has negotiated to charge, right, RIGHT.
So my insurance knocked a lab bill of mine from 423.00 to 207.27 thats great RIGHT? WRONG. If I had no insurance that facility I went to would knock 68% OFF the bill. SIXTY EIGHT PERCENT!
That would have made MY portion $135.36. Wait a second.
So I called the facility back and asked WHY in God's green earth if I was UNINSURED and LESS likely to pay my bill would I get a better effing discount than what I PAY when I have insurance coverage that I PAY for?
She said they are not allowed to give me any other discounts after my insurance pays for their portion of the bill.
Did you read that right? I HAVE insurance coverage that I PAY FOR out of my pocket, ok....do you follow? If I was uninsured I would have to PAY LESS money for the lab bills.
I am so freaking stunned, irate, flabergasted all in one moment. I want to puke. Thats a $70.00 difference in this one bill. My other labs this year would been 20% less if I was UNinsured. What a JOKE. They said they legally have to charge it to my insurance if I have insurance, they cant just let me pay the discounted price. WHAT THE HELL?
I am so freaking ticked off right now. I am so freaking ticked off at people who work the system and screw the system. We (working married, tax paying, insurance premium paying citizens) (NOT PEOPLE WHO GET FREE STATE HEALTH CARE) are the ones getting screwed in case you have yet to figure that out. We pay 100% our daughters health insurance premiums out of our pocket, no government assistance programs here.
Monday, May 12, 2014
You can check out our team page here: SchulerMotors
So far I am up to $620.00 even though it is showing a bit less.
We have FOUR WEEKS post walk to enter donations (or at least the total that will show on any award you earn at the awards dinner which is June 19th at Modern Woodman park Kari told me)
05-31-2014 it the date to get all your donations turned in!
Friday, May 9, 2014
I swear doing a pump change every 3-4 days makes me go into this dumb rut. The rut that I dont want to be in or think about. My skin scars pretty easily, like that ugly reddish purple type scar. Yeah thats what my skin does for months to years I can see it.
The side of my hip and love handle area look like a purple polka dotted map of scars from insulin pump infusion sites. I hate it and I dont hate it. I know that my t:slim insulin pump is saving my life and prolonging my life by many years but I hate the marks it (infusion sets) leaves behind on my skin. I hate it. I look at it and I feel so upset that I have to keep doing this to myself. Then my mind wonders into, why do I have to have this damned disease, why the hell cant they just cure it already? I am so sick and tired of all the carb counting, weighing my food, guessing carbs, guessing too low, guessing too high, changing my pump out, changing my Dexcom sensor (which has been freaking stabbing me since my husband put it on me yesterday and its ticking me off), poking my finger, buying test strips, paying a fortune for insulin, paying a fortune for pump and cgm supplies, the list goes on and on.
Wednesday, May 7, 2014
I NEVER take it out of the platnum case (http://www.tallygear.com/index.php?route=product/category&path=90) for fear of water damage. I cant tell you how many times I have gotten a water droplet on the front of this case, it is not water proof but I bet you it has saved my Dexcom 100 times.
So it was lunch time, right, yep, check my blood sugar. 146. What? Wait, how the heck am I 146, I was just low like 45 minutes ago. t:slim insulin pump says I need a correction of .55 units
Dexcom says 118. Hmm 118...ok that is not 146.
So I recheck my blood sugar again. 128. Awesome. Pump says correction of .28 units
I dont know about you all but I am REALLY sensitive to insulin. A difference of .27 units is kind of a big deal considering my basal for this time of day is .65 units. Yeah that's like a little over a half of a unit per hour that my body needs. ONE HALF of a unit. I cant even get that precise with a stupid syringe, no wonder my blood sugar was freakin bananas when I was on shots. ( I took shots for like 8 years and it was stupid for me to not start pumping sooner) For basal during this point in my cycle I only need 15.138 units a day.
Anyway my point being is that I dont know what I would do without my Dexcom. Yeah it can be way off one way or the other but at least it is there to tell me when my blood glucose meter is off. Sometimes its way more than 18 points and I know to some of you that wouldnt make a difference, but to me it does. I have had my meter give me two different readings more than 50 points apart.
So for those of you on the fence, so to speak, about Dexcom or a pump I say go for it! Most companies give you at least 30 days to decide to keep it or not. I know that Dexcom and Tandem Diabetes give you 30 days to return them and I would expect them to take it back later than that if some crazy issue came about. The ONLY reason I could ever see a person return a Dexcom would have to be some crazy allergy to the tape that cant be worked around and there are many many work arounds for allergies you can find online on Facebook, TuDiabetes or other bloggers. An insulin pump, like my t:slim is an adjustment and a much bigger one that the Dexcom. It is a great adjustment for most people and if I ever had to go back to shots I dont think I would live for very long without major complications. Right now I am going through a rough patch with my Diabetes and my last A1C was crap, pure crap but I am working on it and being more aggressive with my carb counting and trying to take boluses on time, I have an issue with forgetting. I also have this hatred of low blood sugars, like many other Diabetic people. I know its really stupid and counterproductive but I just dont want to go low. I hate it and the tighter my control becomes the more dang lows I have.
I just dont know what I would do without my Dexcom and Tandem Diabetes t:slim insulin pump.
Monday, May 5, 2014
Are you in the Sauk Valley Illinois Area and looking for a Facebook group for support and resources?
I created a new group for our area!
Check it out, join the group, vent about your day, find information you are seeking to help you with your Diabetes, meet other people in real life with Diabetes, any one with any type of Diabetes can join and their family members may join to support you as well.
Saturday, May 3, 2014
Tuesday, April 29, 2014
"Type 1 diabetes is a daily struggle between high and low sugar levels. One tool, a Continuous Glucose Monitor, makes life easier. At age 65 this device is taken away."
I am not near retirement but fear I will not retire because Medicare currently does not cover CGM.
Go here: http://sixuntilme.com/wp/2014/02/19/guest-post-crusading-cgm-coverage/ to Kerri's blog to read about how you can help get Medicare to cover CGM!
Also go here: https://www.popvox.com/bills/us/113/hr3710
Wednesday, April 23, 2014
I am currently using Humalog in my t:slim insulin pump and I do not have any issues with it. Prior to pumping I was on Novolog because at the time it was my insurance company's preferred brand. Now the insurance I have doesn't care which one I use.
Here is my hang up, Novolog gives a discount card good for two years. http://www.novolog.com/NovoLogSavings/NovoLogSavings.aspx I would pay $25.00 per month if I use it. I am paying $50.00 per month now. We are talking about a $300.00 difference. That is HUGE!
Do you think I should try switching to see what my results end up? Does anyone use this discount card now and do they let you renew the discount card after two years?
Someone PLEASE chime in!
I am very sensitive to insulin so I wonder if I change, will I have to start at square one adjusting my pump settings? Or do most of you insulin sensitive people see not much of a difference? I know there is suppose to be much difference but as you all well know, your diabetes may vary.
So after my Endo sent in the forms for me to get 300 I get my approval letter stating that I am approved for 140. Huh? 140? They come in bottles of 50 not 10. So I called my Endo's office, yep we asked for 300, ok great thanks! So I call my insurance and after waiting forever they discovered I did get 300! YAY! GREAT!
I called the Contour Choice program hotline to ask if my card was still good. He says he has no way of telling me that I have to ask the pharmacy and he also said that they have not yet extended the discount card program due to end May 31st.
If you go to: http://www.bayercontour.com/Meter-and-Test-Strip-Savings/ContourCHOICEProgram/Home You will see that is states it now ends 12/31/2015, yep thats right the people giving out the information on the hotline at Bayer don't even know this! Awesome!
Call the pharmacy to give them the good news. Or so I thought. I asked if my Contour Choice program card was still good and she said no it is expired from being used 12 times. So I go online and renew my discount card and then it finally works! My test strips will again go from a co-pay of $50.00 down to $15.00 It is a pain in my butt to get this done every single year but holy smokes does it save me a lot of money! It goes from being $600/year for test strips down to $180!
If you are using the Bayer Contour Choice discount program it has been extended, just go to the link and renew your card or if it gives you fits, act like you are getting a new one and it will then renew the old one. I had to go this route to get it done!
Thursday, April 17, 2014
Wednesday, April 16, 2014
Did you know you have the ability to help guide the FDA to require test strip companies to make more accurate strips for us?
FDA has two draft guidance documents about blood glucose meters that are open for comment until May 7 -- and it is encouraging the public to share its thoughts and suggestions. Join us in commenting. We have links to details, sample comments and a how-to guide.
MAY 7TH, ok that is the deadline. There are like 277 comments and that is IT!
WHY haven't you commented yet? I know I have.
Do you want more accurate test strips? Did you know your meter is allowed to be 20% inaccurate?
Did you know right now there is no testing of the strips that are being made now? They can be more than 20% off because no one is making sure they are NOT more than 20% off. Inaccurate test strips can lead to serious consequences, insulin doses are based off the number that is on your meter's screen. That is serious business, inaccurate insulin dosing can lead to an ER trip or more seriously, death.
Did you know we can request the FDA to make our test strip and meter MORE accurate?
Please go to http://www.stripsafely.com/sample-page/guidance/ and follow the directions to leave your comments and let the FDA know just how VERY important this is to people with Diabetes.
DO IT NOW BEFORE YOU FORGET PLEASE!
Thursday, April 10, 2014
Monday, April 7, 2014
I have heard nightmare stories of people shutting theirs off for whatever reason and the memory being totally wiped clean. Yeah. I am one of those idiots who hadnt uploaded their pump lately and tweaked a bunch of settings, AND had none of them written down. SMART.
Yep and it wouldnt turn back on no matter what I did. Major FREAK out moment. I tried plugging it in unplugging it, holding the on button, everything and nothing worked. Then finally it turned back on and said welcome to your new pump whatever screen. YEAH so I called Tandem at that moment.
Got a SUPER awesome lady on the phone and she helped calm me down after a few choice swear words and me apologizing and she said it was ok, I know youre not swearing at me. HAHA! Yeah I was swearing at my pump and my stupidity for not uploading. I forget her name, but she was great. She talked me through getting the pump to realize it had insulin in it, after I had to of course, prime the mandated 10 units of insulin. Then THANKFULLY my settings had been preserved in the memory somehow. I don't know how but they were. They are written down now. I have yet to upload, I was waiting for my new pump to arrive before I plugged it in again for fear it would shut down again.
Now I am afraid to plug my pump in. Yeesh.
I am on a Facebook Tandem tslim goup and it sounds like I am not the only one this has happened to, quite a few people had the same problem. So I asked everyone who that this happen to reply so I can call Tandem and ask them what is going on.
My replacement pump was flown to me via American Airlines on Sunday and I got it this morning via a courier service from O'Hare Airport. That's crazy, but awesome since I have NO back up system. Another DUH moment. I called my Endo to get an RX on file for some long acting insulin and to see what sort of process he wants me to use for my back up. I really do not want to use Lantus or Levemir. Both of those insulins hate me and put me on a roller coaster ride from heck.
I want to give a huge thank you to Tandems awesome customer service for getting me a new pump right away and for getting me off the ceiling with my level of stress when it shut down. It's hard to explain how important that little piece of metal is to someone who is not a pumper. It is the key to my life basically, I cannot function without it.
Diabetes Mine has brought up the discussion over the NY Times article on new Diabetes Innovation and its costs. Dr. Joel Zonszein obviously doesnt know what it is like to live with Diabetes as he states CGM technology offers dubious improvement. Really? You gotta read this article on Diabetes Mine.
Thursday, April 3, 2014
He said the number one thing is that Doctors and their supporting staff are afraid of change. Change can be scary I suppose but Diabetes is an ever changing disease. Type 1 Diabetes is always changing from day to day. Why wouldnt you want the best tools available to help your patients stay on top of those moment to moment changes? Why would you put your patient on a Medtronic sensor when their success rate is so low. Not even 50% of Medtronic sensor wearers are wearing the sensors daily at 6 months. So whats the point of puttting people on it still? Really? Especially if you know the long term success rate is so low. Why would you not want whatever is the best for your patients? If one brand of sensor doesn't work for them why would you not want to give them another option?
Medtronic sensors hurt, or at least the last version did and you have calibrate them ONLY when you blood sugar is stable and I hear over and over again about the range being crap. Like you can only have the pump and sensor 6 inches apart? Yikes. My Dexcom is on my arm and my receiver is on my desk. At least three feet apart. I can calibrate my Dexcom whenever the heck I feel like it and it only requires one every 12 hours. Easy as cake.
Carrying an extra device is kind of a drag but the trade off is worth it and you don't have to be on a pump to get the Dexcom. Dexcom is pairing up with Animas and Tandem Diabetes. I am on the Tandem pump t:slim (which I LOVE) and Tandem hopes to have it available this year. I am guessing it will be early next year, but that's just my guess.
I have been a Dexcom wearer since December 2011, I think. I have maybe, maybe not worn it for 3 weeks total in those many months. 27 months of continuous wear and every so often I take a one day break. I took a 4 day break once and I seriously thought I was going to have a mental breakdown. I couldn't handle not knowing what my blood sugar was doing. I couldn't do it, it was crazy. I cannot go backwards in my Diabetes care. My Dexcom and pump have become my lifeline. I could not imagine going to shots and no CGM. Knowing what my blood sugar is doing all the time and going to sleep at night with a little bit less worry is revolutionizing for my Diabetes management.
The Dexcom has been such a game changer for parents. I could not imagine going to bed wondering if my child would crash in the night or not and possibly have a seizure or die. The parents in the Dexcom groups I am in are just completely in love with this system and it has saved some of their sanity and worry about their child sleeping at night. If my daughter were to ever become Diabetic (I pray every day that she doesn't) the first thing I would get would be a Dexcom. No doubt in my mind for one second. If I could get it for my Diabetic dog also, I would. Some of these parents schools give them such an incredible hard time about asking them to manage their Dexcom and it just kills me to hear that. This tool makes their job so much easier to help keep these kids safe. Its called change, don't be afraid of it, you should want to change and learn and help these kids. Getting told you are Diabetic to begin with is very hard and it can be very secluding and depressing. No one else gets it. Kids don't need their school to throw a huge fit over them having a Dexcom or a pump. Don't make them feel any more less normal than the other kids. Diabetes can make you feel like an outcast and as a kid with the pressures of school, I cannot imagine how they feel. I was diagnosed after high school so I didnt deal with a lot of the b.s. I hear from other people.
My t:slim pump is also a no brainer and people are still afraid of it. The ease of use of this pump, for me, is a hands down winner. No changing to a million different screens, no more scrolling up and down to enter bgs or carbs. All touch screen. Hello, it is 2014. Who wants to look at a way out of date analog green and black screen? Medtronic has a great pump dont get me wrong and I had great luck with it but they need to get with the program, they didnt even redesign the newest pump. I can litterally enter my bg and carbs and take a bolus in seconds with my t:slim. Not possible with Medtronic.
I am excited for the upcoming Dexcom & Tandem innovations. Sending my bgs to my smart phone and a paired t:slim pump and hopefully in five years a closed loop pump/cgm combo. Wearing a device that just manages my Diabetes sounds like magic to my ears. So many innovations on the horizon and so many things to look forward to.
My point being if you are a health care provider and are refusing to learn the Dexcom system or a new Pump brand or refusing to show it to your patients who are out of other options or are needing the extra help, shame on you. Shame on you for denying your patients the tools they need to manage their disease. Not all systems work for everyone, we Diabetics need options. If one doesn't work then we need to try a different one. Don't just push one brand over another because it is comfortable and its what you know, you need to find what works best for your patient living with this disease.
I cannot believe in this day and age that Doctors are refusing to learn new technology.
Do we still use outdated drugs that are less effective than new drugs? Do we still drive cars made in the 1920's that didnt run for crap and had to be fixed every other day? Would you sell someone a washing machine that you knew in 6 months would be broken and the purchaser wouldn't use it anymore? Would you willing buy a car that you knew you would hate in 6 months to a year?
Learn the new tools, show them to your patients, give them all the options on the table, let them choose the systems they think will work the best for them. We, the people with Diabetes are the ones who have to go home and use these tools effectively and manage our disease without you holding our hand at home or helping us count carbs.
Wednesday, April 2, 2014
Ok so my Dexcom rep told me that there will not be a Dexcom rep at my local JDRF Walk to Cure Diabetes in May.
Wait? Come again?
For real Dexcom, you just got pediatric fda approval and no one, I mean no one in my rural area has heard of Dexcom!
Hire ME for the walk!
I could sell the heck out of Dexcom. I cannot live without mine and I hear over and over from parents how wonderful its made their lives and their kids' lives.
I have no college degree but I have worked in car sales for 14 years full time 18 years total and I can walk up to any stranger and strike up a conversation.
I just want to sell this product to the people in my rural area, make their lives so much better! I dont want a full time job, I love my current job. I just want to sell your product and show it to the people here. I want to show it to everyone. I want everyone to know it is an option available to them. Its another tool in the diabetes tool bag and not many people know its just sitting there waiting for them to pick up and use!
Friday, March 28, 2014
"Diabetes is a great challenge in the developing world. Many children and adolescents with diabetes die quickly or are chronically unwell due to lack of availability of quality care. The International Diabetes Federation (IDF) Life for a Child Programme currently supports diabetes clinics/hospitals caring for children and adolescents in 43 countries.
The IDF Diabetes Atlas (Sixth Edition, 2013) estimates that there are over 497,000 children under 15 years with type 1 diabetes. There is probably a similar number of youth with diabetes aged 15-25.
However, the estimates for numbers of children and youth in many developing countries are very incertain due to lack of data. Additionally type 2 diabetes is on the increase in children and adolescents in all countries irrespective of socio-economic status. It is estimated that 80-100,000 children and youth around the world are in urgent need of assistance.
Lack of access to insulin remains the most common cause of death in a child with diabetes (Gale, 2006). The estimated life expectancy of a child who has just developed diabetes could be less than a year in some areas (Beran et al, 2005). Many die undiagnosed, others through lack of insulin or lack of expert care. In some countries, expert care is available but resources are limited and so early and serious complications frequently lead to death in young adulthood."
By donating just $1 a day to the IDF Life for a Child (LFAC) Programme, you can provide a child with:
- Regular insulin
- Quality blood glucose monitoring equipment (meter, strips, lancets)
- Essential clinical care
- Up-to-date diabetes education materials
- Specialised diabetes training for medical staff
The Programme aims to provide:
- Sufficient insulin and syringes
- Blood glucose monitoring equipment
- Appropriate clinical care
- HbA1c testing
- Diabetes education
- Technical support for health professionals
Please go to: http://www.idf.org/lifeforachild/donate
You can read about the news here: http://www2.jdrf.org/site/MessageViewer?dlv_id=38778&em_id=22090.0
This is great news and thank you to all of you who sent messages to your representatives and please send them a thank you via the link on the website.
Insert really flabbergasted face from me.
I know I am kind of setting myself up for comments like this when I have to tell someone why I am being rude and eating in front of them but it doesnt mean its ok for people to say such things and I feel I should tell them why I am shoving food in my face like its the last piece of food with sugar in it in the world.
I don't understand the need for people to say these things so a person living with Type 1 Diabetes. I swear Diabetes is the only condition that people feel its ok to say, well my grandma/grandpa/uncle/aunt died from Diabetes. I usually just brush it off but sometimes, man, its like they slapped you in the face and said oh good luck with that I hope it doesn't kill you too. They might as well say exactly that.
Normally I say something to the affect of well treatments are a lot better today and we can check our blood sugar unlike 30-40 years ago no one checked their blood sugar at home. We also have better insulin and I am on an insulin pump and glucose sensor which makes management much better than in your relatives time. I try to keep it simple because usually they really dont care to hear what I have to say about it or they get this really confused look on their face. Getting all technical with a non Diabetic person is usually a waste of breath.
I dont know, I guess I am just a little bit tired of hearing people say that. It hurts even if it doesn't appear to. Or I guess it hurts me, I cant say how any other Diabetic feels when they get told this. Never in a million years would I say to someone, oh well I know so and so died from that, if they have that same condition. Good Lord people can you share a little bit more of a positive response. Maybe something along the lines of oh, I hear that treatments are a lot better now and there is a lot of new technology available. That would be a much kinder thing to say.
Thursday, March 27, 2014
Huh? Say that again?
That is crazy, its available ONLINE for anyone to download. Seriously.
I am pretty sure I downloaded the software onto my CDE's computer for her and it was no big deal. Why are doctors offices having such a big cow over this? WE, the people trying to manage our Diabetes are paying YOU, the Doctor to help us. Why do you they feel its ok to complain or whine about it at all? Sorry, no sympathy from me. I mean seriously, I am pretty sure my insurance gets charged over $200 bucks a pop to see my Endo, and my Endo is freaking great so I dont complain about the costs. It still isnt exactly easy to pay when you are paying a lot of money per month just to stay alive.
Last year I had my first child and managed my Diabetes. I paid $19,000 in medical costs last year. Yes you read that correctly $19,000 and was off work for two months. I made no money last year.
Complaining about downloading free software is unacceptable.
Go here to download it, FREE:
Here is the list of meters you can download to the software:
Tuesday, March 25, 2014
March 24, 2014 4:10 AM EDT
A very good article by Ginger explaining some of the ways Diabetes changes your life and the way we have to navigate around it.
She talks about how:
1. Diabetes is nonstop, 24/7.
2. The pressure to be perfect is impossible to endure.
3. We are constantly being graded.
4. Diabetes can be very scary.
5. You're constantly defending yourself.
Check out the article at the link above.
Any way, in case no one you have heard of them or need something like this, here is their website!
Monday, March 24, 2014
Your category would be individual consumer, a few people were confused on what to choose. Or at least that is what I chose.
03/27/2014: There are only 201 comments on there now. How many Diabetic's are in this country and there are only 201 comments!! PLEASE leave your comments, we NEED this!
APRIL 7th is the DEADLINE TO COMMENT!!
"FDA has proposed new meter accuracy guidance. They are open to our views and have two dockets to take comments on the draft guidance, before they become final rules. These dockets are a unique opportunity where the FDA is focused on listening – we need them to hear us. The current rules for glucose meters date back to 2003. If that is indicative of the frequency of rule making, it may be another decade before we get another chance to help shape the future of meter accuracy.
Let’s make this count. We only have until April 7th.
The number of comments matters. The more FDA gets, the more the diabetes community will be heard. Other interests will lobby for their views. We must speak up for our health. Our lives." http://www.stripsafely.com/sample-page/guidance/
Wednesday, March 19, 2014
Tuesday, March 18, 2014
What do you wonder? Leave me some comments about your thoughts and I will post them.