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Wednesday, November 27, 2013
I hope you all have a wonderful Thanksgiving full of great food, family, a ton of extra insulin, and temporary basil settings!
More importantly be thankful for your insulin and if are able to donate to IFL, Insulin for Life, please do. Kerri's blog struck a cord with me today. Check it out here: http://sixuntilme.com/wp/2013/11/27/much-thanks-insulin-for-life/
Saturday, November 16, 2013
My endo said that a new faster acting and faster ending insulin is being developed. Which one is that, do you guys know?
I need this insulin. Humalog and Novolog just dont work fast enough and they last too long in my system.
I am so sick of lows. My endo said I am just super sensitive to insulin, as in activity and the newer faster one will really help me.
Hurry up already.
13 years of crazy stupid lows is enough.
Im so ready to be done with low after low.
Im so ready to be less worried about going low, what will cause me to go low, doing the things I like to do outside without carrying a month supply of juice boxes, glucose tablets and trying to figure out ways to not go low. Having people be unable to understand my situation...Im just so ready to be done with activity induced lows.
Its funny that I talk about lows right now when Im stuck with high blood sugar. Ironic.
I do not know what is wrong with me or my tslim but I cannot get my blood sugar to stay down since last night. I changed my set this morning and even took a shot of insulin. Being over 300 for over 12 hours and I feel like total crap. Now my stomach feels like crap, I have no ketone strips and I have a baby asleep on me who will wake up if I try to move her.
Diabetes you suck.
I guess my blood sugar is on strike against insulin today.
Ive taken so much insulin that Im afraid to run a temp basal and my dex is on its two hour start up since it pooped out after over three weeks.
Why is it when one thing goes wrong they all go wrong.
In this moment I am a slave to my blood sugar. I cant do anything or go anywhere until I get it down and that pisses me off. I need to clean my house but at this point doing that will cause me to rise even more, I need to go to work/my dads car dealership and paint trim but I cant because it feels like maple syrup is pumping through my veins. Patience doesnt exsist when I am this high and I hate it. Come on insulin start working already.
Thursday, November 14, 2013
My Diabetes isn't the same as any one else's Diabetes, we are all so different. I can't go more than one day without a low blood sugar and some people can go two months without one. That is why we are different. One low blood sugar left unattended to can kill me. One month without insulin will kill me, if I am lucky to make it that long. We all are hoping for a cure someday and hoping to wake up one morning without taking insulin. I am not disabled, my pancreas is disabled so therefore doing the work it is suppose to can be a daunting task at times.
Controlling Diabetes isn't really something you can do, you can manage it but you cant control it. My pancreas is what is suppose to control my blood sugar. You will have highs and lows no matter what type of control you try to get. My Diabetes is always changing, it is never same from one day to the next and then you throw in hormonal monthly changes and it gets even harder. I am not asking for sympathy just understanding about Diabetes and less uneducated comments about how I should manage my Diabetes or how my Diabetes is going to make me go blind someday, I am aware of the possible complications. Telling me about your great Aunt who lost her leg doesn't help me. If you want to help me, ask me how you can help. I am doing the best I can with the tools I have available to me.
JDRF states: Despite significant advances in blood sugar (blood glucose) level monitoring and insulin therapy, people with diabetes still spend significant portions of the day with too high levels of blood glucose, placing them at risk for the development of diabetes complications. However, maintenance of normal blood glucose levels is currently unattainable with today’s tools. Thus, unfortunately within their lifetime, people with diabetes remain at risk for developing diabetes complications.
This is why we as Type 1 Diabetics are really looking for better treatments or a cure and want the world to know that sometimes no matter how hard we try we still end up with complications and the judgmental words and stares don't really do us much good.
The other day I had a customer in my office doing paperwork and I was low so I was eating glucose tablets and I had to excuse myself for eating with them in my office. The gentlemen said its ok I am Diabetic too!
Anyways to make a long story short we were talking about how you have to eat like a bird to manage your blood sugar and avoid big spikes and to compensate for eating food for lows.
He said yeah, I eat like a bird too. A big bird!
I thought that was funny anyway.
Wednesday, November 13, 2013
In my blog postings and feelings I am representing my Diabetes and no ones elses'. My life with this disease may not be the same as anyone elses'. In my real life, day to day I dont ever hardly speak about it unless I am given the opportunity to help another Diabetic find a good doctor. Or tell them about my life saving insulin pump or dexcom.
These things are not fun, but it isnt terrible. Do I love having all this crap on me. No. But it helps me live better.
My Diabetes, my diabetes can be a bear to control. My lows can be intense and come out of no where. My lows drive me insane. So much so that somedays Id rather run high. Then there are the days when I forget my insulin because my baby is screaming and I go high as a kite. Yeah its my fault but if my pancreas worked I wouldnt have that extra worry and stress and see that ugly number staring back at me. Its not an excuse, its the truth.
I dont feel as though I should be ridiculed for my feelings and thoughts, yet I am. These are my feelings, not anyone elses. I know my postings help other Diabetics not feel so alone. I get your emails.
I dont walk around moping and depressed because of my Diabetes but I do go here to vent and by doing so others dont feel like they feel this way and no one else does, because no one else wants to read what it really feels like somedays. I dont feel like I have a black cloud over my head. Just certain moments in time feel that way. So I vent because of whatever reason.
I know a lot of other Diabetics want to act like all is peachy and perfect but it isnt but I also dont think about that sort of thing 24/7 just certain moments in time.
Ive been called a lot of things in my life and my personality is my personality. Take it or leave it, if you dont like it, dont come back. One thing I can never be called is a liar. I state the truth and thats that. I think sugar coating is stupid and a waste of time.
So when I ask people to share a video of a 7 year old child with Diabetes it shouldnt cause a big war. That 7 year old boys diabetes is a lot like mine. I want a cure and I want a normal life without Diabetes. I guess that is too much to ask or put in front of people. That is how my Diabetes makes me feel. I am like that 7 year old in the way that I hate the stares and the looks like I am some sort of freak. Maybe they dont bother you, but they bother me.
Asking people to show their support for Diabetes Awareness doesnt seem too much to ask does it?
Have tissues ready for the tears.
A lot of people post a lot of videos on facebook and watch them and share them on their pages. None of those videos are something that portrays a type one diabetic like this does and I bet no one will share this video. Some people would rather stick their head in the sand and not help get the correct info out about Type 1 Diabetes or toss any support or compassion my way or any type one diabetics way, we often feel like outcasts. I dont want pity, just some support would be nice. Anything Cancer related gets blasted everywhere but not Diabetes. This disease has the potential to take my life every single day. Share this video on your facebook page and I will forever be grateful.
I have been Diabetic since 2000.
Why cant I remember to check my blood sugar before and after meals? I can set ten alarms, silence them and still forget.
I can check my blood sugar, start eating and then forget the number to input into my pump. I have to get my meter BACK OUT AGAIN and read the number.
Do I have memory loss or what?
Anyone else experience this?
Tuesday, November 12, 2013
What do you all think about it? Do you feel like these studies are done in an unbiased way? I just don't feel like I can trust any study on statins, there is such a controversy surrounding them.
I was on them for 13 years due to family history of high cholesterol. I went off them to have a child and I have not gone back on them.
My type one grandfather has heart disease but he also smoked. He passed away in 1987 at a young age, Diabetes testing and control really sucked then. That is an understatement in itself.
Do I really need to worry about Heart Disease because I am type 1?
Has statin use dropped the countries number of deaths related to heart disease or stroke? Where is that study showing the drop?
Read it and tell me what you think about it all?
How many of you are on statins?
Copy of the news report.
(CNN) -- If you're not on medicine to lower your cholesterol yet, you might be soon.
Thursday, November 7, 2013
So the owner of PortaPocket sent me some of her products to try. I got the small and medium sized pockets and 12 and 18 inch bands.
Call me weird but it works and after about 3 days you dont notice it at all anymore. Plus when I use my ankles you would have no idea I had a pump on me.
<<===This is the small pocket on a 12" band held on with velcro. The velcro makes it easy to unattach from your leg. It holds my t:slim pump very well!
I dont even feel this on my ankle at all.
<=====This is the medium pocket and 18" band on my thigh, outside of my pants because I dont feel like flashing you all and scaring you with my chicken legs! It is a slide on pocket that is held on firmly with two straps on the back of the pocket. It holds my t:slim or Dexcom very well!
These would also be good for women who wear dresses or skirts. I do not wear either so I cant really test it out, but so far when I put it on it is secure. No slipping down and flopping around.
Us Diabetics need options.
The t:slim is on my other ankle here in this pic under my pant leg.
Check out her website www.portapocket.com and use the discount code I have for this month of November.
Wednesday, November 6, 2013
- I have type 1 Diabetes and that means my pancreas doesn't work and never will again without a cure.
- The treatment for type 1 Diabetes is insulin. I will die without insulin from a bottle.
- Insulin has to be bought with a prescription from a doctor.
- You cannot buy Humalog or Novolog insulin without seeing a doctor. Humalog is what is in my insulin pump.
- Without insurance coverage this insulin is VERY expensive and currently the manufacturer programs to help the uninsured also have income guidelines and these guidelines still leave a lot of people unable to afford their insulin.
- Type 1 Diabetes is not curable. Websites are constantly spewing cures for Diabetes. No supplement, Diet or anything else will cure me.
- Taking insulin and being Diabetic means that my blood sugar levels fluctuate and these fluctuations cause damage to my body and its internal parts. Kind of like running an engine with too little oil, it does damage over time.
- High blood sugar levels can lead to complications later on in life and some of these complications may come even with good control of your blood sugar.
- Low blood sugar can lead to seizures, coma and death.
- We were not meant to do the work our pancreas does, it is not an exact science.
- Diabetes is different for every single person, there is no one size fits all treatment plan available. I cannot pick the plan I want out of a book and stick to it and expect it to work.
- Endocrinologist (the specialists we see for Diabetes) are not all created equal. I have seen as Endo that used a plan based out of the 50's, I have seen an Endo fresh out of college and wanted me to be perfect (which is not possible) and I have seen an Endo that tried to give me advice on my own life and health and yet was 100 pounds over weight.
- I wish that it wasn't so HARD to find a good doctor.
- Diabetes is hard, we cannot do or make any decisions without first thinking of our Diabetes and controlling it.
- Diabetes is a job we didn't apply for and don't get vacations from.
- Diabetes is on our minds 24/7 365 days per year.
- Checking our blood sugar is not fun, we do not enjoy poking our fingers with needles.
- Type 1 Diabetes is not brought on or caused by the person enduring it, it happens because our bodies killed off the cell that make insulin in our pancreas.
- I didnt eat too much sugar as a kid.
- We check our blood sugar by poking our finger and this number that pops up on our screen of our blood glucose meter is the amount of glucose in our blood stream.
- LOW BLOOD SUGAR MEANS WE NEED FOOD
- HIGH BLOOD SUGAR MEANS WE NEED TO TAKE MORE INSULIN
- When someone with Diabetes says they need something with sugar, they mean right now not in 5 minutes.
Tuesday, November 5, 2013
a Rafflecopter giveaway
- Please enter your info into the drawing in the box above
- The info you entered is sent directly to JoeyBra, not me, I do not know who you are, your email or anything else. =D
JoeyBra will give away one JoeyBra Sport to one lucky Diabetic to use to hold their pump, CGM, iPod, cell phone or whatever you choose.
I personally would love this sport bra for sleeping in, as I currently wear my pump in a sports bra at night to keep it near my ears so I hear alarms and to keep from getting tangled in my tubing. The one thing I dont like about it being in my sports bra at night is that it flops around and sometimes comes out in my sleep.
I would also like
this for the times I go for a walk and don't have big enough pockets or
no pockets. This bra would also be really nice to carry around glucose
tablets since they are flat and would not stick out.
What fits in a JoeyBra?
- The JoeyBra Fashion can store a phone, credit card, spare cash ID, key, or any other small item.
- The JoeyBra Sport can store a phone, ID, credit card, key, or other small items.
- Simply exchange it for the right size by following our instructions for returns.
- Please see the Returns page.
Why would I want a JoeyBra?
- Do you frequently travel, run, or attend events where a purse isn’t convenient? The JoeyBra allows you to carry your valuables with you while you are on the go. JoeyBra aims to provide a secure, discrete, and fashionable solution.
How many pockets does the JoeyBra have?
- Fashion bra: two pockets
- Sports Bra: two zippered pockets
- The Sports Bra pockets are lined with a water-resistant liner that will protect your items from sweat & water damage.
- The pocket endures normal conditions of sweat or harsh weather. We do not recommend submerging the pocket in water when electronics are inside. JoeyBra is not liable for any items that undergo water damage.
JoeyBra will be doing the drawing to be assured a randomly selected winner will be chosen. The winner will be announced on December 2nd and that person will then send their contact info to JoeyBra and they will mail it to you direct.
So please like my page and leave me a comment as to how this bra would help you, or tweet my @T1DWarrior and tell me how this would help you also!
- Like or Tweet
- Diabetic Warrior on Facebook https://www.facebook.com/diabeticwarrior
- Joey Bra on Facebook https://www.facebook.com/JoeyBra
- Tweet using my @T1DWarrior or #T1DWarrior
- Tweet using @Joey_Bra or #Joey_Bra
I have been in contact with Mariah and she has been really quite awesome to email back and forth!!
JoeyBra, a Seattle, WA based company, was founded in 2012 by Mariah Gentry and Kyle Bartlow. They first met when they were juniors at the University of Washington. As recent graduates, they are taking on JoeyBra as their full-time focus.
Inspired by UW's vibrant Greek system, JoeyBra was created for women who are constantly on the go and struggle to find a place to put their ID, keys, or phones. JoeyBra allows women to carry their valuables with them no matter where they go or what activities they choose to participate in. Leaving these items at home may not only be inconvenient but it may pose a safety risk. With JoeyBra, women will never have to worry about losing or damaging their valuables again.
For more information or answers to your questions, please feel free to contact us.
|Copyright © 2013 Megan & I Am a Type 1 Diabetic Warrior 2011 - 2013 - All rights reserved.|
I could NOT resist!
- Who wants to feel like they are dying? Raise your hand?!
Monday, November 4, 2013
I switched to an Iowa doctor last June 2012. So I have a new rep named Joe. Joe is great!
So I referred two customers to Dexcom and pretty much talked them into getting the Dexcom. My cousin David and Uncle Mike. I emailed Tim to let him know that I referred them and he said he could no longer fullfill that promise, he stiffed me. So yeah I am a little bit ticked off. I also referred a couple people online in Facebook Diabetic groups.
Dexcom? Wanna mail me my two sensors?
I mean really? It is two sensors. I could ask for two boxes.
You have my address on file, please send it to my work address not home.
I'm starting to think I should work for Dexcom part time, but I doubt that is even a possibility. I would love to go into doctors offices and show them the system and get them to prescribe it to their Diabetic Patients. Too bad I have no college degree at all so they think I am not a qualified candidate. =( I cant even begin to tell you how many people in my rural area I have told about the Dexcom and told them how amazing it is.
TWO SENSORS? Seriously.
Saturday, November 2, 2013
Friday, November 1, 2013
A few funny stories ( now funny ) about insulin pump mishaps.
At a play with my family. My mom and I take a potty break along with 200 other women. I do my business and ripped my site out off my butt in the freakin bathroom! Yuck! So luckily I have my purse and the spare set I always carry. So I have to exit my tuna can stall and put a new set on my side/hip/butt in front of 50 women staring at me like I have three heads. Yeah not awesome. Its funny now though. I wonder what they thought I was doing.
Leaving my cousins rehearsal dinner in another city, 5 hours away, my aunt and cousin in the back of my husbands truck. Im the dd as I was pg and just as I sit down to drive my infusion set stabs me in the leg so bad that I have to jump out of the truck, whip my pants off and yank that dang thing out of my leg. Yep, pants came down and all, in a public parking lot. It was probably the worst a set has stabbed me. Mustve hit a nerve because it felt like a knife in my leg. Luckily again, I had my spare set with me and changed it at my aunts house.
So to make a long story short, you always need to have spare everything with you at all times when you wear a pump. It has saved me many times. None of the other times were as funny though.
This is for those of you on multiple daily shots. I am no longer on shots, Im on a tslim pump, but I wish someone would have shared this info with me in 2000.
Rotation, rotation, rotation....please be sure you are using a wide area of injection sites no matter how bad it hurts.
I am living proof of what happens where your p.o.s. endo doesnt give you good advice or make sure you are doing what you are suppose to. My current endo is not the pos endo, he is awesome.
I have scar tissue on my stomach, hard lumpy nasty bumps under my skin that will never go away on their own. I hate said scar tissue. I think I actually hate it more than being diabetic. Seriously. It bothers me that much.
Someday when we know for sure we are done having children I hope to save enough money to have a tummy tuck. I want it gone. It prohibits me from wearing many cute shirts. It inhibits me from ever wanting to wear a swimming suit. It inhibits me from doing a lot of things.
So if you are like I was for 8 years, insulin injections burned me like a son of a gun, new spots burned even more, it sucked. I wish someone like myself would have told me, hey you know if you keep using your stomach you are going to get this terrible lumpy scar tissue and you will hate it forever, I would have toughed out the stupid burning pain.
Im on a pump now and it doesnt burn me, it was such a huge relief going on a pump. I also learned that I cant wear my pump on my stomach at all. I put an infusion site in my stomach and within 1 hour Im ready to rip my skin off. Crazy right?
So I wear my pump infusion sets on my sides, hips, lower back, and sides of my butt. So far arms are a no go, they also burn within one day.
I dont know what the freakin deal is, I have met maybe two other people who also cannot wear their sets on their stomach, on a facebook diabetic group. TWO people. Makes you feel like such a freak when you only know two other people with your same problem.
So anyone out there using only their stomach, I just want you to know that it can and will cause you to get scar tissue. We all form it differently but most the time, once its there, its there for good.
We all have periods of time when we are in burnout mode. Right?
It sucks, there is no lying about that.
Some days I just want to eat something without figuring the carbs, so I guess. Some days I dont want to know just how bad that guess was, so I dont check my blood sugar. I dont want that crappy number staring back at me. We all do it, we all get it.
Its rounding the curve out of burnout that is so hard. Getting back on track can be like trying to walk through a corn maze without ever getting lost.
So what helps you get out of burnout mode? Share your tricks and tips with me.
For me to get out of burnout I have to think of my life in 30 years, my family, my own expectations, and all the other people I have helped. What good will I be to anyone later on in life if I am in kidney failure? I want to help others with Diabetes and how can I do that if I am the worst example of a Diabetic. I dont want to be a bad Diabetic, but the long hard battle gets really exhausting.
I have other type 1s tell me things like, wow I didnt know I could get my strips cheaper, or I didnt know we had such a good CDE 15 minutes away in a nearby city. Showing people my Dexcom. They are amazed. I didnt invent the Dexcom but sometimes you would think I did, no one has heard of it. These are the things that keep me going, keep me sharing information and trying to help others. My friend and cde Calli may need to clone herself soon I am referring her so much. :-)
Talking to or emailing companies that make things for us Diabetics and getting you discount codes. Shoot I didnt even think it would work and holy crap it did! I am shocked!
On a side note, thank you Nathan from tandem diabetes again, for reinspiring me to blog again.
All these companies with awesome people are really inspiring me. Now if only we can get Humalog and Novolog to be cheaper, that would be amazing.
These are the things and the people that help me stay on track. Its not easy, every day has its own problems, issues and battles but if I can help you by sharing my take on things, I have accomplished something.
Let me know if those discount codes have helped you save some money! Id love to hear from you. :-)
Keep on keeping on!